Family support and understanding is really important during the time of our suffering. I know it is hard for them too understand!! But the more information we can gather on this terrible beast is really important for all who is involved. The sooner the treatment the better it is too get a handle on. For all too many people have not understood. The sooner the pain gets put under control the better we can cope with it all. The disease of or dystromphy is all hard too cope and accept what and how it affects our LIVES!!! IT is SO IMPORTANT that the drs understand what they are treating. So many drs. SAD TO say likes too give prescripts and no listen too us. Passing us over for what ever reason. So sad that Drs do not listen or just like the prescripts. We need too know our drs are specialists and what they do deal in. LOVES annie
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Family support and understanding is really important during the time of our suffering. I know it is hard for them too understand!! But the more information we can gather on this terrible beast is really important for all who is involved. The sooner the treatment the better it is too get a handle on. For all too many people have not understood. The sooner the pain gets put under control the better we can cope with it all. The disease of or dystromphy is all hard too cope and accept what and how it affects our LIVES!!! IT is SO IMPORTANT that the drs understand what they are treating. So many drs. SAD TO say likes too give prescripts and no listen too us. Passing us over for what ever reason. So sad that Drs do not listen or just like the prescripts. We need too know our drs are specialists and what they do deal in. LOVES annie
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