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 Message 1 of 4 in Discussion 
From: MSN NicknameCJF830  (Original Message)Sent: 7/18/2008 4:38 AM
My hubby called NY and they told him they are hoping to get back to the ketamine treatments some time around the first of the year.....thye have to do more testing for what ever reason they dont tell you why what happened that they are back at trials.
My Rheummy wont see me until I get the treatments and my AS is getting worse too. My new thing is my right hip dislocates while im asleep and no matter how hard I try it just wont move forward. Good thing my Hubby took a few sports med classes and knows how to manipulate it to going back into place.then its sore for days but at least its back in place.
My newst also is the shower...I cant stand the water hitting my skin. It hurts and is very uncomfortable.so its tubby time. problem is my lower back is bad from the AS and I cant sit or get out too easy from a laying down position.
Its one thing after another.I have two auto immune diseases and neither wants to give me a break...
SO depressed and anxious. Going thru my xanax like pez lately and I dont like it. But I have that constant pit in my stomach...ladies its like the sadies you get with PMS.
I get aggrivaated with the young girls at work comlaining they are tired form being out all nite or they complain about this hurts or that is sore. and they call out sick for a snifle and here I am hopped up on every pain remedy I can find to just get me thru work....I know I shouldnt be so hardon them but I feel its soooo unfair...I know I need help...
Carla


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Reply
 Message 2 of 4 in Discussion 
From: MSN Nicknamelgs131Sent: 7/18/2008 12:37 PM
Carla,
Where in NY can you get ketamine treatment?  We live just outside NYC and the only places I know for ketamine are Philadelphia and Hot Springs, AR.   Linda

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 Message 3 of 4 in Discussion 
From: MSN Nicknamemirage_angel_hopeSent: 7/19/2008 3:53 PM
  seems like you have alot going on hopefully all this news might amount to help for you.
as for the water I never thought about it but I have the same problem and I never though that it was rsd related I think you have solved an 8 year mystery for me
don't worry about being annoyed at young ones.I am 23 have had rsd for  10 years and because of this I can not stand my classmates in university they drive me crazy because I am missing the best time in my life because of this and they complian that there bboyfriend didn't call at lunch.We will always get mad at people in general who don't relize how good they have in that is normal you are so entitled.
mirage

Reply
 Message 4 of 4 in Discussion 
From: MSN NicknameCJF830Sent: 7/20/2008 11:51 AM
There Is a Dr Richmond at the Hospital for  special surgery . He worked under the Dr at Philly and now does his own In patient therapy. Although he has stopped right now due to a problem with the ketamine but I am hoping for the beginning of the new year to go in for my  treatment.
If you want his number let me know.
Carla
 
In a message dated 7/18/2008 7:37:46 A.M. Eastern Daylight Time, [email protected] writes:
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New Message on RSD Helpline Support Group

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From: lgs131
Message 2 in Discussion

Carla, Where in NY can you get ketamine treatment?  We live just outside NYC and the only places I know for ketamine are Philadelphia and Hot Springs, AR.   Linda

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