I had those problems that were caused by a  med thast my doc gave for the rsd.I ended up needing to go on the pill to start to fix it which is weird since I was 19 at the time and on the pill.

I know how hard it is to be alone.Stories ike yours make me sad.I felt alone in the begining because until many here I waited 9 years for a disnoses at 10 year old should get this.So all through junior high the schooom was told not to give into my whinning.So it makes me sad because I can understand that because they didn't know I got treated that way but they know what wrong with you and still they treat you that way.

I lost alot because as I just discovered the docs knew that I has it 4 years before I started sghowing major smyptoms.At 10 there was major nerve damage and that all they told me parents it was so 4 years later when it got really bad they still said nothing.I so wish I had read those medical records soon thouigh it something I plan on reading for the rest of my life so I feel somewhat empowered through this process.Which is all you can do cause I like you lost most of my fav activities and it is diffcult but you just have to keep fight and find something that you fight to keep.

I fight everyday to finish university even though I know that I proabaly won't be able to use the degrree it abuot having something that this condition can take from me.

my best advice addd annie or I email to messenger email can be found in group list, friends with it help so much make it easier and make you feel that it is not just you

 take care

mirage