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General : Treatments
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 Message 3 of 6 in Discussion 
From: MSN Nicknamelgs131  in response to Message 2Sent: 12/22/2008 12:42 PM
We had an appointment with Dr. Schwartzman last April.  We had to wait 14 months for it.  However, when the time approached, my son was doing so well we cancelled.  Then in June after he had been able to stand for a few minutes and even walk a short distance, the RSD spread from his legs to his arms and he got worse.  I was looking into taking him down to Tampa to be treated by Dr Kirkpatrick with the 3 day 4 hour high dose ketamine bc Workers' Comp was taking so long to approve a lidocaine infusion when we discovered that his doctor here (New York) at Beth Israel does ketamine.  So, that saves us the journey which I was not sure how we would do anyway.  I had yet to find out how the airlines could accommodate him if at all.  The journey from NY to Philly was the main reason we did not go to Schwartzman.  Our doctor admitts that they do not know what dose of ketamine to give or for how long.  The guy in Florida does high dose ketamine for 4 hours a day for 3 days.  She (my son's doctor at beth Israel) does less ketamine continuously 24 hours a day but I am not sure for how long.  I am very scared that it will not work and my son will spiral into depression as he did when the spinal column stimulator didn't work.