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| | From:  oldharricat (Original Message) | Sent: 8/10/2004 2:25 PM |
Hi I'm OldHarricat (well thats the way I feel.............lol) I'm actually a 30ish female from Australia. I'm really glad that I found this site. I've had RSD in my arm since 1998. I hope to get to know all of you and hope that we can all help each other :) |
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HI {{{{{{ HARRI}}}}}} glad you found this site,,, look around the boards there is alot of information there they are finding new treatments an things about RSD,,, all the time..... SURE hope too meet in chat soon... we can all get too know one another... I have been down with my computers an in hospital sooo much,, I just have not felt like doing too much.. I am getting ready too go into surgery again... Then I will have more blocks too be done after that for stopping RSD from spreading... RIGHT now it is confined too right leg anfoot mostly.. IT is in both of my feet..Share with us how you got RSD,, an any kind of helpful treatments you have had with it also THANKS again... HOPEFULLY I will be able too answer sooner,,,,,, now... talks soon |
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Hi everyone......... not sure if this an old site or a new site as most of the post is atleast 2003. My email address is above and i would love to hear from anyone who is cenntectd to RSD. Regards Helen |
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{{{{{{{{{ HELLSBELLS}}}}}}}} Nice meeting you ,,, with our RSD,,, an sickness,, we just useing the boards too vent,, n kind of staying in touch... Hope you come back,,, an search around here,, if need anything at all,, do not hesitate too leave message here...I will try too get back too you as soon as is possible.... I have been offline due too loosing husband,, moving right after,,, being in hospital,,,, n both of my computers being down... U may add me too your msn messenger tho [email protected] we will chat... Be happy too meet you... annie |
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Hi Annie,
Thank-you for your warm
welcome.
sorry to hear of your loss and recent
spell in hospital hope things are improving for you.
I went to see the doc today and he
actually put Chronic regiona;l pain syndrome on the sick note ( first time
anyone has put it anywhere apart from consultant to GP letters).
I live in the UK so I may write
strange things but i have a wacky sense of humour and never mean to
offend.
look forward to talking to you on msn
messenger.
regards
Helen
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dear hellbells Welcome to our little family.Ity sad to hear that another person was given this monster.Sorry I wasn't able to welcome you sooner.I have other conditions beside rsd and I was in and out of hospital.I know were a small group but trust me if you post a message here someone will answer you we always do.Annie and I answer most of the post.You welcome to email me if you wish to chat if you like.I around offen enough but busy cause I'm a full time student.I hopeyou find all the support and understanding you came seeking for. love mirage |
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Hi Mirage,
Thank-you for you welcome, I look
forward to corresponding with you and hope you are feeling better after your
spell in hospital.
I am due to go in on Weds but it is
only for a carpel tunnel release and scraping of the tendons , usually it would
be a day patient basis but they are going to try the aneastheric on my arm for 3
days, I will not know anymore until after wards about what they use or how they
find the nerves when they open it up.
I have just bought a book on pain
called The War on Pain by Scott Fishman M.D. with Lisa Berger, so far it seems
pretty helpful in understanding the pain mechanism.
Doesnt stop RSd but at least it
acknowledges it, I got because it is one of the few books that had pages uopn
pages about RSD.
Hope you are having good
day.
love Helen |
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dear helen How did everything go.Is the treatment your doing helping you.Sorry I haven't replyed soon I've been unwell due to new treatments.You more than welcome to leave a message here if therere anything I can do.reading is always a great help knoledge is a great tool.How is your family taking all of this just curious? You take care of yourself Love Mirage |
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Hello Harricat!! I just found the site myself. I am hoping that it will help us deal with the everyday ordeals that we have to face that others don't begin to understand. Tell me about your condition. I am a 29 yr old female from the USA. I have had RSD (CRPS) for 15 months and counting. I had to have a total hip replacement and the doctor cut a main nerve while I was in the OR. I have no use out of my left leg. I had severe drop foot and it was inverted (looked like my foot faced the opposite direction). I just had another surgery 3 weeks ago to try and correct that. It is a 50-50 shot. I look forward to talking to you. Have a blessed day. Charbear |
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