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RSD Intro's : Hi I'm F,lar
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From: MSN Nicknamersdno  (Original Message)Sent: 1/26/2005 3:23 AM
Hi I am F,lar a character I liked out of Dragonriders of Pern ,I have had RSD Dx ed since 1969 its been a long strange trip indeed .I have RSD in all 4 limbs but Type 1 and 2 in feet and legs where as I have Trophic or type 3 or 4 if thats in your beleifs ,its really stopped mattering to me .But I find exciting that they found an APA Test can tell if you have Fibro which I also have but rarely ;like to admit around people with just Fibro ,none of us can know anothers pain I figure but RSD has gotta be up there ,I think the APA Test may still be in trials it was when my Rheumatologist usd it on me but if its not out yeyt it soon will be .I have had RSD sooo long ,sometimes its very difficult ,I hope this group is still in existence Gentle Hugs F.lar


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From: MSN Nicknameannie57011Sent: 2/26/2005 8:03 PM

Ouch,,,,,,,,,WOW,,,,,,,,U have had a long trip byselve out there... I have had  Rsd, now for  most of  7 yrs.. I have had fibro,, now for  5 yrs..  strange trips for sure for both of us..  AN,,, yes,,, we hate having too admit too anything like this.. Family n friends find this hard too accept period.. I am so sorry I have been off line due too problems with phones n lines n moving again.. I will be off a short time again this month,,, due to going into hospital for morphine pump. testing,, if it works will be in for permanent one... I am praying this works... I need to be able to rest n have some releif....... It really gets old.. I am on a slow slow computer.. This week I will be getting a new one..  So I should be up n running,,, before I go into hospital.. I hopes.. With my disabilitys also tech said he would show me how to run windows Xp.. I hope so I am slow tho...  GLad we can share things here tho.. get ahold me on  msn messenger hon,,, if I can help in any way  contact me [email protected].. love too hear from ya... annie