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| | From:  mommazshine2 (Original Message) | Sent: 3/15/2005 8:03 PM |
Dolores, Don't think of me being so much worse off with this disease. My goal isn't to compete with anyother individual suffering with this disease. To each person regardless of severity when exposed to trauma to them it is equally devistating. To answer your question, no I did not have RSD before I had the screws taken out of my back. I did wake up in stage II, completely skipping the first stage. Some of the research is rather dismal but please remain positive. RSD is a very difficult disease to diagnose but hang in there. I am more than willing to answer any questions' you may have. Even with me 2 1/2 years post-diagnosis I am still learning about this disease. There is research going on out there that everyday something new is learned about RSD. I pray that oneday a cure will be found for such diseases. Through research I have found out alot of helpful information. However, I believe the best information comes from personal experiences. Conversing with others' that suffer from RSD is in fact the optimumal resource. So once again, if I can answer any questions I am more than willing if I can help. Happier days, Mommazsunshine2 |
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Biggggg hugggerzzz too you,,,, this all is soo unwelcome in our lives,, that noone wants too deal with this dispectable disease. Noone. Medicines can be even more so added on too all else.. Not a problem tell us all of what u want too tell us,,, we will help all we can also.. I have just gotten out of hospital for second time in a week. Having a real scare did not help my moods out at all.. No funn here niether.. Hoping too chat with you soon hugggerzzzz too you annie |
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Dolores/ Annie, Hope all is well with you as with everyone else. Annie I hope you are recovering from your recent hospital stay. I have recently came to know about how RSD effects other parts of our bodies, aside from our limbs. Due to this disease I now have an irregular heartbeat. I have been blessed with an awesome, thick head of hair and from the RSD it falls out terriable. I am of child bearing age and have come to find out that our reproductive organs too can be effected. During a recent visit to my pain specialist I spoke with a man that just recovered from a 7 month coma, due to his respitory system shutting down because of the RSD. To hear experiences like this scare me absolutely to death. As the person suffering with this disease it is difficult but I believe our families suffer terriable emotional scars from watching us suffer. I was reading the post in the RSD NEWS section about the doctor in Germany that thought he could cure this disease. I sure would like to find somemore literature on this. I would be worth the trip... if it worked. How has you autoimune system been effected from RSD? I am always eager to learn anything new about this thief in our lives, we call RSD. Better days to come, Mommazsunshine2 |
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Good to hear from ya {{{{{DOLORES }}}}}}}}}} we do know that RSD is not needed by anyone that is for sure.. I want more info on that as well I am positive that Janine will get that too us as soon as she gets it... She pushing to get thru school,,, with her RSD,,, it is a process... My amune system is really >>>><<< Anyone ,,,, noone would want,,, any kind of infection comes I am sure to be first too let anyone know it is around. But with all the other problems RSD,,, cannot be the king problem in me. So I am leary to say too much about what is problem.. It may be with the other things that I am fighting as well as rsd.. Tho, we all know rsd, a bigggg thief in everyone we contact lives.. I go back too dr. on Tuesday,,, for the 6 hrs of traveling that I will be doing on Wed. n seeing if all else,, n how we are going too plan for the pain management since the morphine testing went flying out the window... Will keep you informed later... talks soon.... Sorry I could not be of more help,,, Hopefully I will be better after I get a little more settled with some other answers to my problems.... huggiezzzzz annie |
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Sorry I got your name messed up {{{{{MOMMA}}}}}}}}} pleeez forgive me,,, I should be asleep by now,,,, needed a break so I was asnwering messages,, n such... Please forgive me,, know I am thinking about you also..  annie |
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