|
|
 |
Reply
| | From:  kgangel0810 (Original Message) | Sent: 2/17/2006 8:48 PM |
I am also on the FM board because I have FM as well as RSD. I just found out after 5 months of severe pain in my rt hip , leg and foot that I have RSD.
I have heard of it, but did not really know what it was, only that it was another Chronic Pain problem.
I am scared, I can barely walk now, I am hoping there will be some hope for the future, the therapist I see thinks they will be able to help me at least a little bit, I sure am praying they will.
Please share with me anything that may help me for going crazy, thanks so much
hugs,
kgangel |
|
 First
Previous
2-6 of 6
Next
Last
|
|
Reply
| | | From: mggone | Sent: 2/22/2006 1:28 PM |
hi i'm ericka, i have tried a pain clinic.it had physical thep. and occupational thep. a dr. and a health and behavior group. i got alittle help from the occ. thep and health and behav.like how to relax . but over all it did not help so much. i am now going to a gym to do what they taught me. i am down for a day or two after. no real help yet.most day's i just do what i can and hope that the next day is better i have learn that stressing out over it makes it worse.i just tell my self that i did nothing to deserve this and i will not let this take my life. i hope you are doing better. it took them over a year to find out i had rsd. i have had a total of 7 nerve blocks they did not work. so i went to the nerve stimulator for me that was a mistake. i have a muddled brain. i can't move my left leg when i want to. i can't feel when i have to go to the bathroom. it helps very little with the pain and my back is a hundred times worse. the battery sticks out so you can see a lump in my shirt. i can't sleep with it on well what little sleep i get. every morning i think i have to do this all over again. it is hard but it will get better. i am lucky to have a wonderful husband and mom and dad. they keep me going. feel better |
|
Reply
| |
Hi Erica,
So kind of you to answer me. I appreciate it so much. I do know what pain can do to a person and it sounds like you have a very good outlook, even though you have not had much, if any help.
I am sorry for you that someone has not helped you better then this. I had a test today in physical therapy to see how different things felt against my leg. The softest silk they used even caused me to have pins and needles up and down my leg. It is very strange what this does to you. They did Cranialscral therapy and nerve massage, it did help it to feel a little more relaxed after but now at home I am having problems again.
I think they may be able to help a little though, I am hoping anyway.
I am so glad you have support at home that means so much. My husband feels horrible about all the pain I have and is very understanding. So is my mom, my kids don't really understand, but they still feel bad.
So nice to hear from you I will try to keep my chin up, I wish the best for you as well
hugs,
kgangel |
|
Reply
| |
Welcome,,,, So sorry I am slow in answering I have been offline for little over 5 months due too being ill I have a little more wrong with me than rsd,,,,, all of it is is miserable n sooo unwelcome... None of us,,, not even the drsreally know,, they are searching for more answers for us...,, how affects,,, n what is in store for us,,,, yaa,, meds n things is really hard too tell,, what will be gone next even not too talk about how tired n worn we stay physically n mentally... Sleep I wonder if there is any too be had with all of this meds are suppose too make one sleepy I sure miss it each nite... Look at boards there are alot info here.. If any questions arise,,, be sure too know too give me shout,,, on yahoo messenger,,, I will answer if I am signed in [email protected],,,, one I am signed into most all the time in evenings..... any help I can be please know I will do all I can... annie |
|
Reply
| | | From: kdutton | Sent: 5/29/2006 1:50 AM |
I was diagnosed with RSD in my left leg on the 1st of this month. I went to the doctors with pain in my leg and the inablilty to walk. I have been to PT but they really have no clue what they are doing with RSD. Since I started with this era of RSD, I had RSD in my left arm but was lucky enough to go into remission after 51/2 years, my leg has grown very cold and turns almost back by mid afternoon. I am a W/C person so I have to wait on their approval for anything to be done. According to the IME doctor I have already advanced from a stage 1 to a stage 2 and he told W/C that if something was not done quickly I would be wheelchair bound within 1 year. Still nothing. RSD progresses in its own time manner. Good luck to you. |
|
Reply
| |
 Big Welcome too the group. Glad you found us.. Hoping that you will add me too messenger also.. RSD does it own thing as it feels up too it.. SAD that it works like it does on each person. DRS. cannot find out why as of yet.. it is up too each of us too show them n educate as much as is possible. [email protected],, [email protected],, We have too show them,,, that we are the trailblazers for the next generation so that noone suffers like this no more. I am searching n searching for answers that is for real. HOpe you had a great holdiday weekend. Painlevels are up with me,, So I did not get ontoday at all. So this is been noo fun at all for me.. Feel free too add anytime,, too posting n venting or what ever ,, Sure hoping that you got family support in this,,, Not fun at all going thru this alone. I am signed into messagers whene I am online both at same time,,, feel free too holler.. annie
|
| |
|
First
Previous
2-6 of 6
Next
Last
|
|
|
Free Forum Hosting
Important Announcement
Return to RSD Intro's