My dear dear Kelly,,,,,  we all have  been thru these issues.. U r so rite that rsd needs more research...  No doubts of that one... we all have too kee searching for drs. who do understand..... Sadd,,, really sad,,, when we do not live in areas that gives more choices...Sadd,,,,, hard one too cope... I am so glad that I do not have too make those    300 mile trips each week no more!!!!!!! Soo thankful... So thankful that  I can now drive myself into drs.!!!!! Sooo very thankful.... That I am out of corn field county!!!!!!! Amazing!!!!!!!  Truthfully amazing!!!!!!!!!!!!!!!!!!!!!!!!!!!!    But keep searching.. There are some great groups on   internet with rsd support... look around here there are more links for such groups here  also... Have as pain free days as is possible dear...  Glad too have you here posting also... Annie