Hi Frank,

 

What you said to me brought tears to my eyes and I wrote a letter back to you about my experiences as a spouse of someone with RSD but I guess I got too long winded and my browser timed out so I don't think it went through. I guess I'll try again if you like. I feel better getting it off my chest though. If you'ld like to talk more about what you went through with your wife, let me know. It might help you heal if you can see the other side of  RSD. I don't want to push it on you though if you don't want to go there its ok.

Anyway, I just want to sue the pants off of workmans  comp and all those involved in their decision making and proceedures or rules!!!! Some times I think all the frustration we all experience with all the doctors and insurance companies and workmans comp ect... just makes the RSD worse. Its like we are still not being heard. I want to make them all change their policies and proceedures for handeling and treating suspected RSD patients!!!! I just don't know where to begin or what to do. If I had the money I'd make a video of different people with RSD and their families showing how it affects us all. kinda like those drug commercials that kids do or the smoking commercials that make such profound points only more in depth. I'd play it over and over on every station that I could. Its like it has to be in their face to see it. It's so aggrevating!

Ok I'll calm down.

I would love to help with this site. I don't know what to do but if you guide me I'll be happy to help. I've never done anything like that before.

Frank thanks so much for replying to me. It really meant a lot and helped me see the other side of RSD myself.

I hope you are have at least a comforatable day and I look forward to talking to you again. We should really work harder on a chat site though I think more people would be likely to stay in touch.

Tami62