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Michelle, I am so sorry, What a run around you got. I hate to say but it's not that unusual. I have rsd in both of my hands since Nov. 2003.
You say you are on lyrica, awful side effects-I was given that, hated it. I want to tell you to make sure you keep talking to your dr. (through the nurse,I know) tell him about your problems with the meds. It took a while, but now I have a dr that listens and responds and I have a combination of meds that lets me function. I worry about my liver, but so far I haven't seen any signs that there are problems.
I tried a scs trial. Didn't help. I have had numerous ganglion shots (dozen one summer with less and less relief). I am watching what is happening with the ketamine trials and all. I don't want to jump in just yet. When I am having a flare up that nothing will kill, I think that I would like to try anything.
My family is very supportive. It's nice yours is too. I assured my kids that this was not inherited. I do worry that they might have inherited a predisposition for rsd. My 2nd daughter has such cold hands and feet.
Anyway, I just wanted to say, hang in there. Keep trying different meds and different combinations of meds to raise the quality of your life.
Heres to a low pain high energy day! ---what the heck are those?lol |
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