Hi Annie,

 

My name is Vickey and i was dignosed with RSD it coming up on 4 yrs,it has been a real roller coaster for me.So i know i how you feel it can get very depressing at times because i dont know with you but i know with me, people dont seem to understand what its like to be in pain everyday,i think they think i just be like its all in my head when he they be calling me and they ask so how are you feeling and i tell them i am having another bad, or my husband sometimes wants to get me out of the house and i dont want to go because i know if i go out for a little while i come back in for the little outting i had i am in pain. I dont know where your RSD is located at but i have in my left arm/neck/left leg i am on my second SCS which is called a spinal cord stimulator they just added the leads to the leg,because the RSD just moved down to my leg.You know some of these doctors need to be more educated about this condition because i dont know about you but for me it they keep telling me there was nothing wrong with me and by that time the RSD had already set in for 10 months.

 

So trust me i undestand your pain to the fullest.