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Hi Lorri,
Thank you for your kind message. i am sorry to hear that your daughter and mine have similar troubles. It was nice however to get your letter as I do feel that I am reinventing the wheel working things out here. I am lucky in the way that, although her Dad is somewhat disbelieving sometimes he is mostly supportive. I think men can't take it when their little girls are hurting because Dads are supposed to keep them safe. The two steps forward and the one step back makes him frustrated as he wants her to be as she was, back in university and out and about, j ust having a real life.
I answered the lesions question on how we deal with them. The band aids work for the small ones but the other may help with the large one she has. They last for weeks though and over a month ago my daughter had a small mole removed and it is still not properly healed as it went into one of the sores.
You say you are looking into the ketamine infusions, The doctor we are going to see in California does use them. His name is Dr Joshua Praeger and he is an expert in RSD. He also implants the spinal stimulators, which a year ago he suggested but her RSD has spread so we are not looking at now. He is part of the UCLA pain clinic and hopefully he can help her. The program uses lots of psychology and bio feedback along with exercise and a reiew of her drugs. I will keep you posted on how things go as if it works for my daughter, it may help yours too. Who is the doctor you are hoping to see in New Jersey?
Take care of yourselves and I will be thinking of you also.
Diane Bhimji |
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