My dear ,,,, dear,,,, My heart cries for you rite now!!!!    Our sytem of drs n professionals are not so professional at all.  Soo sad!!!!!!!!! My dear,,, I am certain that you are not the only one in this situation at all. If We were closer,,, I would have u both over all the time.  I to am isolated. not by choice,,, but cause noone caring enuff!!!!  I am going into ten yrs with rsd. Thankfully,, all the treatments has just slowed my down. Now with the stress n all changes in my life n adding on more stress,,, and infections n things,,,, rsd and ms is starting  too go into  high casuality warfare is seeming.  I am just working too stay on top of it all. Nothing that I would want to have too have anyone going thru this not at all.  Wishing,,, we closer.. But am on messenger signed in all time,,,  give me shouts,,,, will answer as soon as receive.  Please know we are all dealing with issues here.  huggzzz dear one!!!!!!