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Ken,
I hear you about the wheelchair. It hurts me so badly when my feet touch anything that I spend most of my time in bed. I walk in the house with my canes, still trying to master levitation! I have RSD in my entire right side for the last 7 years and in the last 6 months it has been going into my left side. Lately, my eyes have been affected and quite rapidly I am losing my sight. I have a few hours a day where I can see fairly good if there is enough light. My husband is going nuts trying to provide enough light for me to see. My sons are having difficulty learning that ma can't see the shoes they leave laying in the walkways anymore and she trips on them and falls. But they'll come around, they're pretty helpful! I find that a good sense of humor is essential to coping. My dad, who had brain cancer always said if you could laugh at a problem you could get through it. He came out of brain surgery and rubbed his shaved head and said, "Put water on it and call me a ChiaPet!". How I loved that man! So when my days get hard and my depression rages I remember to put water on it! I soak in warm water awith Lavender and Eucalyptus oil, or Rosemary and mint. Seems the combination of those relieves the stinging and burning and deintensifies the pain somewhat. If anything it is relaxing.
Take care, I'll keep you in my prayers.
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