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July : Check in for July
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 Message 1 of 11 in Discussion 
From: MSN NicknameTami62  (Original Message)Sent: 7/9/2008 1:30 AM
Hi all,
 
Well I did it again. I updated the check in page late. I think I need an assistant to keep me on track. Sorry guys. I have been super scattered lately. Just doing day by day like everyone else. Scoti's wc is cut off now and we are waiting for his SSD to kick in.
I must be getting moody with all my friends cause they seem to have no patients with me. If I get that way in here please don't hesitate to let me know.
I am still learning on the web page stuff and organization. I wish it was going faster.
Scoti's pain is getting worse and I feel more helpless all the time. He sure is determined to keep it all from getting the best of him though. He accually keeps me going.
Well I just stopped in to say "Hi" to everyone. Hope you all are feeling better than usual. I know that's kinda difficult but I am wishing the best for everyone.
 
(((((Hugs)))))
Tami


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 Message 2 of 11 in Discussion 
From: ladojoSent: 7/12/2008 2:41 AM
Hey gal! I'm still here and being as full of it as usual. hehe
Sorry you are having it rough... Don't know what we would
do with out you Tam! God Bless Scoti. I pray that he is able
to find some comfort. I wish there was more I could do to help.
I keep praying that God will send me something to be of good
for someone. If that makes any sense... He will also have to
give me that get up and move it on out too. I have been rather
lazy lately.
Bless you all in the month of July! May we all find some joy
in these hot steamy summer days!
((((tami n scoti))))
((((group))))
ladonna

Reply
 Message 3 of 11 in Discussion 
From: MSN NicknameTami62Sent: 7/12/2008 4:41 AM
Well Hello There,

It is so good to hear from you.

As a matter of fact there are a lot of things that you can offer to others. It is so funny that you said that. I was just sitting here last night trying to figure out how to word some help wanted ads for our group. Since this is a self supporting group and the head manager is not here anymore, we need help maintaining this group site. You don't have to be a manager or an assistant to be involved in helping others. There are a lot of things that need to be updated on the boards and there is alway room for new ideas and pages. Even though we have several assistants here, sometimes it is hard for us to do more than say hello. If you have anything on your mind that you might be interested in helping with please let me know. I am making a list of a few things that we need help with and am going to post a help wanted ad to our members in here. Just put some thought to it and see what you come up with.

Thanks for your thoughts for me and Scoti. He is struggling but is ok. I guess we all have to go down this road at some point.

"Without the challenges we wouldn't appreciate the accomplishments."

Wow, did I say that? I should write that down somewhere.....lol

Hope to hear more from you and maybe catch you in chat or messenger this weekend.

(((((Big Hugs)))))
Tami

Reply
 Message 4 of 11 in Discussion 
From: MSN Nicknamerat_lover64Sent: 7/12/2008 6:15 PM
Just checking in to say that Becca...which  for those of you who don't know is my real name, is still around. I haven't really been up to much. I'm afraid I haven't been feeling so good. I've really been struggling with the stomach issues which probably have nothing to do with my RSD although the doctor said that gastroparesis often shows up in chronic pain patients so I guess I'll never really know. The treatment they want isn't covered by our insurance, so right now I'm kind of stuck. I have kind of a weird problem in that lately it's like I can't get myself to wake up. I could sleep the whole day and not know it was past ten because I'm just so tired. It feels like my head is all foggy and I just can't think or focus. All I think about is how tired I am. It's really annoying. I want to be out there doing stuff, not in bed feeling lousy. On a brighter note I have college paid for, had to take out a loan to cover everything but to only owe 2,000 something for a private school is nothing. How would I go about looking up aid for disabled. I mean would a school even consider me disabled? I also opened up a checking and savings account, lol and yesterday i got my debit card in the mail. It's very shiny...lol. I made my first debit purchase, I needed something for my computer. Anywho, when I force myself to forget the pain and stomach issues, life's not so bad.

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The number of members that recommended this message. 0 recommendations  Message 5 of 11 in Discussion 
Sent: 7/12/2008 8:59 PM
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 Message 6 of 11 in Discussion 
From: MSN NicknameA_Normalee_TSent: 7/12/2008 9:00 PM
Becca,

Look up your state vocational rehabilitation services that assist with monies and services for furthering your education. If you are already qualified as disabled your case manager should be able to provide you with the forms you need to apply.

Hugz, Normalee

Reply
 Message 7 of 11 in Discussion 
From: mamajamaSent: 7/14/2008 7:02 AM
Hi all, I am making my check in for July. I had the baby, on June 17th, a couple of weeks early, but everything is ok. I was very nervous about my pain labor vs. RSD. They had to give me pitocin to hurry things up and I got the epidural anyways. I was really nervous about the labor pains going away but my arm getting worse after the epidural. As blessings would have it the epidural made my arm, shoulder and hand gel out too! The baby is doing well, strong and moving! I am breastfeeding so still no meds. My arm is acting up, I think the stress, fatigue and physical demands of holding him is wearing on me. I prop myself up with so many pillows to hold him and feeding. My arm sometimes feels like its gonna give out while I hold him so I find myself holding him mostly when I sit. Standing is limited to moving him to the next spot. Also, getting ready to have my next eval for my wc case. hope this one goes better. Noticed the "pregnancy in RSD" link, thats awesome, thanks to who ever did that one! I know I am not the only one crazy enough to get pregnant with RSD, I am here to help any one else that joins that club. Well, that my check in for the month, hope everyone is doing well.
Peace, -J and baby

Reply
 Message 8 of 11 in Discussion 
From: MSN NicknameTami62Sent: 7/14/2008 12:16 PM
 
 

Welcome to our family little one.

We are so happy you shared the birth of you son with us.

Enjoy every moment possible.

Congradulations from your family at RSD Helpline Support Group!

This webset page was assembled by Teddie using one of the many auto-scripters available at  Chat_Central_Gateway  All rights reserved KENDOC 2005
 

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 Message 9 of 11 in Discussion 
From: MSN NicknameDoobiedoright1Sent: 7/26/2008 6:27 PM
Well
this is a cool idea.
I am new here.
Have had this fun thing called RSD scene 8-7-90
I like the idea of checking in.
Hello to all!

Reply
 Message 10 of 11 in Discussion 
From: MSN NicknameFireball4303Sent: 7/28/2008 7:30 PM
Don't worry Tami.....I'm alway's late.....Fact I think I am now....lol....I'm still alive folks....(nods).....I also would like to take this time to check in for August as well....lol....Need a couple of prayers too....the 15th of August my son lucas and I are driving to Iowa....My uncle has just been diagnosed with a lung cancer that they can not operate on....He say's he's ok with it....The doc told him he has six months left.....When I get there I'll also get to visit with my mom, sister, niece, cousin and of course my Aunt and Uncle.....It's almost 950 miles....And as we all know my RSD is on my upper butt, lower back area...Left hip....And I'm as purple as they come...lmao....I'm gonna have to manipulate my meds...But I just gotta go see my uncle Bob.....He's been one of three men in my life that I was able to see there are real men...not just abusers....He's my Aunt's high school sweetheart...They just had their 50th wedding anniversary.....he's come home from work at lunch every day for a lifetime.....to be able to have lunch with his sweetie....And I love him dearly of course....I'm going to try to take two day's to get there....Thinking that I'll find a hotel at about the heat of the day....relax in the pool for a bit....then eat and sleep till the wee hours and take off again.....I'm going to have to have a  pool or two....Walking in a pool help's the purple go away and help's me maintain....Plus...I'll be missing my hydro-therapy....so...it's a must....Anyway...so sorry I'm not on this contraption much anymore.....Gotta give my arse a rest.....It hoits....lol.....Love to all....xoxoxoxoxoxox....Diana

Reply
(1 recommendation so far) Message 11 of 11 in Discussion 
From: MSN NicknamePhillip99621Sent: 7/30/2008 12:35 AM
Hey, I saw your post about waiting for SSD right now. Well, I too am waiting for a determination from SSD. Basically I applied in April after recieving a year of temp. disability benefits from the employment department for the state of CA. I exhausted those benefits and right after I did this I applied in April. Basically they've been gathering all of my medical records, had me fill out packets of information etc and I'm now in the phase of going to a clinic for physical and mental exmainations by a doctor. My case worker informed me that this is standard procedure. I've had the physical appointment done, and the mental is scheduled for Thursday this week. (they've rescheduled it 2 times on me already due to the doctor being ill or having an emergency.)

So my question is, do you know potentially how much longer I'm going to have to wait until they make a determination one way or another? I'm hoping that after they get the records from my examinations, and combine them with all of my other medical records from multiple doctors I see, then make a determination. Do you by chance know if there are any more steps after the examination which they've yet to tell me about, or is this it before they make a determination?

Thanks for any input you may have that you can offer me. My stepmom was disabled for 6 years and recently returned to work over a year ago and stopped benefits. She was declined the first time, and i know alot of folks are, but I've yet to even have that behind me if they are going to decline me. Theoretically, I don't plan on being disabled forever but right now I've got no other choice. I'm struggling to keep my head above water and I'm actually truly disabled right now as far as my functionability. I've not worked since Feb of 07' and even then it was just part time work while going to college.

I just hope that I get approved soon because I've not had any money coming in since April, and I'm beyond broke! I mean I live at home with my dad/stepmom but they cover my medical expenses, food/gas which is alot. I can't stand not being able to work, or be able to pay my bills, I'm going nuts already! I hate being stuck!

Thanks again,

~Phil

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