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| | | From: mallo (Original Message) | Sent: 9/3/2003 11:14 PM |
Yesterday I went to the doctor and they told me that I had RSD.I`m 51 and not sure what to think.I`ve cry on and off today thinking why me. I had Ulner Nerve surgery last year( left arm)and they think thats how I came down with this.This all new to me not sure what will come next.My next stop is going to be Pain MGT Anesthesia and I hope this will help. I`ve been out of work for 3 months and plan to go back in 2 weeks I hope I can handle it. Thanks for listening to me Pam P.S Any good books that I can read up on about RSD |
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Dear mallo Let me be the first to welcome you to our little family.I am truly sorry you stuck with the monster as it is commonly known around here.None of us are sure what to think when the monster enter our lives.You will have your why me days every once and while we all do.It is alot to adjust to.We will always be here for you if you should need us. As for you question about books.Reading up is a great thing to do it makes the docters appointment easier.I have a book that I was told was very good. LIVING WITH RSDS your guide to coping with reflex syndrome by linda lang and peter moskowitz. .I hope that going to Anestesia helps .If you ever need to talk to some one you can always email me.I am very quick at responding to email. my email is [email protected]Love always your new friend Mirage |
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HELLO,,, sorry I have been so slow in answering,, our weather is been hard on my body too even be online much. RSD is really hard too deal with. READ all you can no be afraid of the things that you may read on it tho. REMEMBER ::::: each person is different,,, an has it for different reasons. REASOn we need support groups and need too get into chat room too get too know everyone and do some venting. This is hard too live with. I know I have had it for almost 5 yrs . IT set in right away!! But the nite mare of RSD is no fun too live with concerning anyone around it. Hope we can be of some help an we can have some fun in chat soon. HOpe everyone wouldlet us know when a good time for all would be so we can get together. loves you all family. annie |
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Pam
Welcome to the RSD family. My name is Janine I am the founder of this group.
I am sorry it has taken me so long to respond but I have been in the process
of a move and I have been away from a computer for awhile. My replies will
be sporadic for awhile as I will continue to be away from my computer during
my transition.
I am so sorry to hear of another victim of the monster. I would like to
suggest to you that you seek counseling now though as it will help you to
adjust to what the future holds. This is something I suggest to everyone, it
sure helped me. RSD is so unpredictable, it is as individual as every person
is so there are no concrete answers as to what is next for any of us. What
is tue for one is not true for some one else. While it limits itself to one
area of the body for one person another may end up with full body symptoms,
while it may spread slowly in one person it spreads quickly in another. For
these and many other reasons it is best that we take care of ourselves in
every way, not just our bodies but our minds and spirits also.
Always listen to your doctor but never think of your doctor as God. Question
everything and learn as much as you can. When you think you have all the
answers there is always another question to ask about this disease. You can
never research enough! Everyone of us who has had this monster for any
lenghth of time has done our share of research and we continue to do so.
Never be afraid to ask us about any procedure the doctors want to do on you,
and never have a procedure done without asking questions of those of us who
have had the procedure done! We are here to help that is why I set this
group up. We don't want anyone to feel alone in this.
When you have those days where you feel like crying call on us. We have very
caring ears. Many of us are on line and are willing to chat at all hours of
the day and night. Right now I am unavailable but I know annie and mirage
are online quite a bit and are very good listeners. They are very willing to
help.
Take care of yourself and know that you are not alone.
Luv and hugs
Janine
"Winners Never Quit and Quitters Never Win"
>From: "mallo" <[email protected]>
>Reply-To: "RSD Helpline Support Group"
><[email protected]>
>To: "RSD Helpline Support Group" <[email protected]>
>Subject: new with RSD
>Date: Wed, 3 Sep 2003 15:14:05 -0700
>
>-----------------------------------------------------------
>
>New Message on RSD Helpline Support Group
>
>-----------------------------------------------------------
>From: mallo
>Message 1 in Discussion
>
>Yesterday I went to the doctor and they told me that I had RSD.I`m 51 and
>not sure what to think.I`ve cry on and off today thinking why me. I had
>Ulner Nerve surgery last year( left arm)and they think thats how I came
>down with this.This all new to me not sure what will come next.My next stop
>is going to be Pain MGT Anesthesia and I hope this will help. I`ve been out
>of work for 3 months and plan to go back in 2 weeks I hope I can handle it.
>Thanks for listening to me Pam P.S Any good books that I can read up on
>about RSD
>
>-----------------------------------------------------------
>
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>mailto:[email protected]
Pam
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