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RSD Questions : OXYCONTIN
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Reply
 Message 1 of 14 in Discussion 
From: MSN Nicknamemirage_angel_hope  (Original Message)Sent: 1/10/2004 8:09 PM
Dear group
I hope that all of you are fell well and that you guys had a great holiday.
I had a doctor's appointment on thursday and he decided that it was time to try some narcotics.So he put me on OXYCONTIN.Have any of you ever been on it?I have been trying to find information on it ,I haven't had much luck.Most site I visited just tell you how dangerous the drug is when misused.So if any of you can help I would really appreciate.
Love Mirage
P.S. I hope that the new year brings better thing for all of you.


First  Previous  2-14 of 14  Next  Last 
Reply
 Message 2 of 14 in Discussion 
From: MSN Nicknameim2stubborn2quitSent: 1/12/2004 4:12 PM
Hey there Kiddo

Oxycontin is an Opiate based medication for pain. It is one of the strongest
there is! It also has a VERY HIGH addiction level (on the level of Morphine)
so be really careful with using it.

Why are they using one of the strongest narcotics to start with? You say
that they are just now starting you on Narcotics (which by the way are shown
to not work with RSD) yet they are starting with one of the strongest ones.
That makes no sense to me. I would be questioning the doctor's decision on
this one.

I have helped detox more than one person hooked on that stuff and I am way
against using it in anyone unless 1. nothing else works or 2. the person is
at the end of their life. Once you go onto Oxycontin there is nothing
stronger other than Morphine when the Oxycontin doesn't work any more.

I have a drug book with Oxycontin in it. If you would like I can give you
more specific information just let me know what you want to know.

Janine



"Winners Never Quit and Quitters Never Win"


H


>From: "mirage_angel_hope" <[email protected]>
>Reply-To: "RSD Helpline Support Group"
><[email protected]>
>To: "RSD Helpline Support Group" <[email protected]>
>Subject: OXYCONTIN
>Date: Sat, 10 Jan 2004 12:09:04 -0800
>
>-----------------------------------------------------------
>
>New Message on RSD Helpline Support Group
>
>-----------------------------------------------------------
>From: mirage_angel_hope
>Message 1 in Discussion
>
>Dear group I hope that all of you are fell well and that you guys had a
>great holiday. I had a doctor's appointment on thursday and he decided that
>it was time to try some narcotics.So he put me on OXYCONTIN.Have any of you
>ever been on it?I have been trying to find information on it ,I haven't had
>much luck.Most site I visited just tell you how dangerous the drug is when
>misused.So if any of you can help I would really appreciate. Love Mirage
>P.S. I hope that the new year brings better thing for all of you.
>
>-----------------------------------------------------------
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ey

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Reply
 Message 3 of 14 in Discussion 
From: JHayes3Sent: 1/13/2004 4:26 AM
Hi I've been on Oxycontin for a little over year now due to my RSD. I would
highly recommend it if you cannot get relief using anything else just start
at lowest dose as you can and still get some pain relief and take it
according to directions and you should have no problems at all. J Hayes

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Reply
(1 recommendation so far) Message 4 of 14 in Discussion 
From: MSN NicknameCJF830Sent: 2/16/2006 11:44 PM
Dear Mirage,
I too am going to start oxycontin,But I have been on everything else.I have an appointment on 2-23 to get started.I have another question????
Has anyone had Radio frequency treatments???? Good? Bad? Indifferent????
Carla

Reply
 Message 5 of 14 in Discussion 
From: MSN NicknameTineecat1Sent: 2/17/2006 11:53 AM
Hi,
 
I had a RFT in 2002. I found it very painful..they did not put me to sleep long enough, then that evening I had to go to the local emergency room and have a catheter put in because I could not pass water. I had to have the catheter in for 3 days before I could pass water like normal.
 
Good Luck to you...
 


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Reply
 Message 6 of 14 in Discussion 
From: FranknberrieSent: 2/21/2006 10:29 PM
Hi Mirage,
 I have CRPS II, for 2 1/2 years a team of Drs tried every kind of drug there is to help reduce the pain..to no avail! I am on Oxycontin and have been for 3 years now, it works for me. I have always taken it just like it is prescribed. At first I took 10mg 2 times a day,after 3 years it has had to be increased to 40mg 2 times a day. If it wasnt for Oxycontin I would have used a 357 magnum(a handgun) to stop the pain. The oxycontin has givin me substantial relief where nothing else would, it does work for RSD/CRPS and for me it works well. Most of the people who bitch about Oxycontin use dont have to feel the pain 24/7 365 or they would quickly shut their mouths. Any RSD sufferer should be givin what ever works to qwell the agony of this hellish disease.If you would like to talk to me about it further feel free to contact me personally at [email protected]
 
Frank

Reply
 Message 7 of 14 in Discussion 
From: MSN Nicknameannie57011Sent: 3/26/2006 2:01 AM

{{{{{{{{{{{{{{{{{{{   ANGEL }}}}}}}} it is super dangerous drugg really is... But there are answers some people  it really helps.. Not fun,,, had me on it for while,,, things it done too me was not having too take very long neither.. reason they put in pump last yr...... yes that is helped me alot.. I am soo glad.....   Just that I have other things wrong also... itt is spread too  other foot n hand now also...  so well I am still blessed as Not having feelings as you guys do.... So that one I miss,,, but the other things are not funn at all I know ,,, the thing about the pump is we do not have the side affects cause not entering body thru blood..  So that helps alot...   the trial is not funn tho was not for me cause of what happened.. O well another story  hope this helps sorry I was sooo slow.. loves u sweety bear... enjoy  life more dear one...


Reply
 Message 8 of 14 in Discussion 
From: kduttonSent: 5/4/2006 12:43 AM
I have taken oxycontin for over 5 years prior to going into remission. I also took oxy IR as needed between taking the oxycontin. Maybe I was one of the lucky ones because when I went into remission I just stopped taking it. I never got addicted. I have once again been diagnosised with RSD again this time in my leg.

Reply
 Message 9 of 14 in Discussion 
From: MSN NicknameTipperOSent: 5/4/2006 6:39 PM
Hi,
 
I think it's so important not to be judgemental and over react to the potential "addiction" of oxycontin or any other opiate.  It is a long acting narcotic so I think it is a better choice when trying to treat chronic pain since the body gets a more even release of the drug throughout the day,versus the sudden onset and faster metabolism of shorter acting narcotics like hydrocodone that people take every 4-6 hours , which causes peaks and valleys.  Oxycontin has gotten a bad rap due to the folks that abuse it. Like any drug, if you take it as directed, and don't chew or crush it (which is something that would NEVER occur to those of us who are not abusers) it is a good option.  I was once on a significant dose of it and slowly decreased it then converted to codeine and then slowly decreased that until I was no longer needing any medication. "detox" is a term I think that should be used for drug abusers, not people who are PHYSIOLOGICALY dependent on the drug, just like people that take blood pressure or heart medication...they can't suddenly stop taking their meds either. Due to increased symptoms this last year, I have recently begun taking it again.
 
 We all suffer so much already, we need to be supportive of treatment that may help someone else, even if it did not help you or me.  I think being critical of oxycontin just because you did not do well with it invalidates those who the drug helps.  People that use oxycontin or any other opiate for chronic pain are not "addicts"...addicts do not take the medication as prescribed and their need for the drug over rides making responsible choices in their life. In fact ,studies show their are very few chronic pain patients that fall into  category  of "addiction" and statisticaly ,they may have been folks with a predisposition to addictive behavior prior to being diagnosed with a chronic pain issue.  As someone else stated in this discussion, there is some question as to how effective opiates truly are in the long term treatment of RSD....but in the meantime, until there is some other alternative, I have made the choice to use the medication because I desperately need something between the pain and my PERCEPTION of the pain, realizing the medication does not eliminate the pain, but just lessens my perception of the intensity of it. Without that bit of "dullness" for lack of a better word, I'm not sure how I could get up in the morning.
Best wishes and I hope it is working for you!
Terry

Reply
 Message 10 of 14 in Discussion 
From: MSN NicknameCJF830Sent: 5/5/2006 2:43 AM
 Never Got addicted???? I hope that can be true.I have been on meds for 6 yrs almosr and I am scared to death that i will have to go to rehab once I am actually treated.
Thanks for the input
Carla
 
-----Original Message-----
From: kdutton <[email protected]>
To: RSD Helpline Support Group <[email protected]>
Sent: Wed, 3 May 2006 16:43:22 -0700
Subject: Re: OXYCONTIN

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-----------------------------------------------------------

New Message on RSD Helpline Support Group

-----------------------------------------------------------
From: kdutton
Message 8 in Discussion

I have taken oxycontin for over 5 years prior to going into remission. I also 
took oxy IR as needed between taking the oxycontin. Maybe I was one of the lucky 
ones because when I went into remission I just stopped taking it. I never got 
addicted. I have once again been diagnosised with RSD again this time in my leg. 


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Reply
 Message 11 of 14 in Discussion 
From: kduttonSent: 5/5/2006 1:21 PM
I agree that oxycontin was a great medicine. I was on a high dose of it the first time I had RSD with OxyIR as an in between med. If it was not for both of these meds I don't think I would have been able to cope with the pain.
Now that I am out of remission I am really just trying to find some type of support group to have people who know what I am going thru to talk with.
----- Original Message -----
From: TipperO
Sent: Thursday, May 04, 2006 9:50 PM
Subject: Re: OXYCONTIN

New Message on RSD Helpline Support Group

OXYCONTIN

Reply
  Reply to Sender   Recommend Message 9 in Discussion
From: TipperO

Hi,
 
I think it's so important not to be judgemental and over react to the potential "addiction" of oxycontin or any other opiate.  It is a long acting narcotic so I think it is a better choice when trying to treat chronic pain since the body gets a more even release of the drug throughout the day,versus the sudden onset and faster metabolism of shorter acting narcotics like hydrocodone that people take every 4-6 hours , which causes peaks and valleys.  Oxycontin has gotten a bad rap due to the folks that abuse it. Like any drug, if you take it as directed, and don't chew or crush it (which is something that would NEVER occur to those of us who are not abusers) it is a good option.  I was once on a significant dose of it and slowly decreased it then converted to codeine and then slowly decreased that until I was no longer needing any medication. "detox" is a term I think that should be used for drug abusers, not people who are PHYSIOLOGICALY dependent on the drug, just like people that take blood pressure or heart medication...they can't suddenly stop taking their meds either. Due to increased symptoms this last year, I have recently begun taking it again.
 
 We all suffer so much already, we need to be supportive of treatment that may help someone else, even if it did not help you or me.  I think being critical of oxycontin just because you did not do well with it invalidates those who the drug helps.  People that use oxycontin or any other opiate for chronic pain are not "addicts"...addicts do not take the medication as prescribed and their need for the drug over rides making responsible choices in their life. In fact ,studies show their are very few chronic pain patients that fall into  category  of "addiction" and statisticaly ,they may have been folks with a predisposition to addictive behavior prior to being diagnosed with a chronic pain issue.  As someone else stated in this discussion, there is some question as to how effective opiates truly are in the long term treatment of RSD....but in the meantime, until there is some other alternative, I have made the choice to use the medication because I desperately need something between the pain and my PERCEPTION of the pain, realizing the medication does not eliminate the pain, but just lessens my perception of the intensity of it. Without that bit of "dullness" for lack of a better word, I'm not sure how I could get up in the morning.
Best wishes and I hope it is working for you!
Terry

View other groups in this category.


Reply
 Message 12 of 14 in Discussion 
From: MSN Nicknameannie57011Sent: 5/7/2006 3:02 AM

it is soo sad,, That people  are soo quick too judge.  Ones that judge us have no idea what we go thru with chronic pain,,, or what Our lives are about neither.. It really suxx too tell us ooo the addiction of... WE NEED WHAT GIVES US ALOT OF RELIEF,, NOT taking the edge of,,, we have too search   soo,,,  hard  trying too find relief... But know we are here for ya,,,, we do care.... Please know we all care... Hope you know chat room is available for who wants too chat,, n meet in,,, Give me a holler anytime I am online...  hope all are having a pain free weekend....  luvzzz n hugzzz  annie


Reply
 Message 13 of 14 in Discussion 
From: MSN Nicknameannie57011Sent: 5/7/2006 3:36 AM

Hello dear one,,,, YEPP,,,, that is rite.. Chroni pain sufferers,,,,, Do not get addicted. Something with the pain n our bodies gets it all thru our system so fast,,, there is not enough in our systems left,, for addiction too happen is the way the drs. explained it too me... So,,, we can spend time, searching for the meds that do work... An support groups with people who can understand what n why,,, we are going thru... It is important that our energy is spent,,,for what we do need...  Hope that you are having pain free weekend as is possible....  Give me a holler on messenger if u need too talk... [email protected]    annie


Reply
 Message 14 of 14 in Discussion 
From: MSN NicknamezapmyrsdawaySent: 9/16/2008 4:45 AM
hi there,
 
i've been on oxy for 5 years now with differen t doses.  i have a periphral nerve stimulator implanted now so don't take as much.  i take 10mg 1-2 times a day.  it makes me cranky, nauseous and hungry.  it has the last side affects as others they've tried me on.  i had to go through psych testing to make sure i didn't have addictive behavior.  they did tell me you body can become dependent on it which is why when you go off your pain is far worse and your whole body can ache.  this goes away after being off it awhile.  psychological dependence is when you are taking your meds for other things besides pain.  that is the true addiction.  some people may take it to escape or try to help them cope with life.  if oxy is taken for the right reasons and you are monitored you should be fine...
zap

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