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| | | From: Kramer (Original Message) | Sent: 6/24/2004 5:06 AM |
Hi all my names Kramer,or Judd,Im from New Zealand,and in 1999........(December 99,I missed the big new years celebrations!)I was involved in a major car accident,hospitalising me for 5.5mnths  With a strong will power and motivation-specially from family and friends I have been able to regain my life back,to a degree! I still have brain damage,which has resulted in memory troubles,fatigue to name a few.I had a steinmen pin put through my left leg while I was in hospital just below the left knee to help with mending my broken left hip,the result being,im walking around,but now have a noticeable limp,and immense pain,of which nobody can offer or recommend anything for!!.Finally im glad to be here,I do not mind talking about my accident. Talk to you all real soon. Judd. |
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Dear judd First I want to welcome you to our little family.I wish we had met under better circumstances but is really nice to meet you.I'm glad you were able to join us.I am glad to hear that you wetre able to recover ssomewhat from your accidernt.You must be a very strong person to get through all of that.I glad to hear that you have a very supportive family that is always a great help in fighting pain and all the other things that go with it.What sort of treatment have you had to help you with this pain of yours. If you ever need any help or just to talk feel free to email me anytime at [email protected]Hope to talk to you soon Love Always Mirage |
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| | | From: Kramer | Sent: 6/30/2004 2:45 AM |
Hi Mirage,sorry its taken me a wee while to get back to you. Pain relief hmmmmmmmmmmmmm lets see,My gp has prescribed me anti-depressents,and some anti-inflammatory's,anti inflams have been no help,anti-depressents are ok,it seems nobody knows what to give me  Judd. |
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| | | From: Kramer | Sent: 7/1/2004 10:01 PM |
Hi All,just wondering how long between messages do people generally get back here?I check most days and nothing has been added...........WAKE UP PEOPLE.... Judd |
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hi there is the the only mail u got cause most my mail go to yahoo, but i
get something from group evey day if your like me could be checking wrong
mail bot hope your doing ok to day take care
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| | | From: Kramer | Sent: 7/2/2004 1:57 AM |
Hi,no my messege indicator is turned off,I just check mail most days on here,but not a real good support group huh.....................what support........ |
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dear krammer
I sorry to hear that you are not happy here and don't feel any support..I just thought yuou should know that many of the people have rsd so bad that they don't have the time of energy to check the computer some day.In some case in just hurt to much to sit down that long.Some are in and out of the hospital on a regular babis like myself but I am fortune to have a computer available to be there.So it become hard tocheck mail.This group is usally active but the manger aren't doing very well at the moment.Just thought you should know before you passs judgement.I not say that of of anger or to be rude just thought you should kniow.But should you ever need anything do feel free to contact me either here on messenger or by email.Hope you have a better day tomorrow.
Love Always Mirage
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| | | From: Kramer | Sent: 7/5/2004 2:56 AM |
Hi,thanks for the clarification mirage,and the great chat  Chat soon Kramer |
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HI JUDD,,,, So sorry I have not been online,,,,,,, I am glad tooo meet you !! Soo very glad you can voice opionions sooo well...... I have been in hospital 4 times since first of yr... YES pain can be very severe... with being in hospital I have also moved.... 2X!!!!! being disabled,,,,, it is not an ease thing too do with body period.... with RSD flares such as I have an ammune system I have I have too be extra careful that I do not get infections... I have had 2 fullll blown flares,,, with RSD this yr.... THE weather uggzzzzz does not help us in anyway.. With alll of that I have had alot of computer problems with connections an being in shop also... I am fully body disabled........... When I do something wrong,,,,,, it is fullly good job that I do ...... This board is been open for venting,,, questions ,,,,, or just talking thru..... the group is growing,,,,, now too get everyone tooo chat is been another problem here....time wise,,,,,, sooo boards we get tooo ,,,,,, just time an availiabilty is been a super problem for everyone..... KNOW,,, we doooo answer.... just give us time....... So sorry you are sooo unhappy,,,,,, an KNow,,, that we do understand pain............. |
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| | | From: Kramer | Sent: 7/9/2004 1:47 AM |
Hi All,sorry for having a moan first off...........I realise that im "lucky"to be here.Good to meet and talk to a cple of you.Being in New Zealand can be frustrating,as we tend to hear about any new medicines,procedures a wee while after the rest of the world which can,as you could imagine,be extremely frustrating at times.............therefore young Judd gets frustrated...quite often lol .Anyways,thanks for listening to my rants an raves,keep on keeping on everybody,till then. Judd ohhhhhhhhhh Ps,is the chatroom running?or is there a chatroom available? |
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HI JUDD,,,, there is chat room, on left side of screen!!! WE alll get super frustrated at times... Sometimes you all get new meds before we do also... Sometimes,,, """"" wet hot towels""" that has been heated in microwave,, for several seconds helps pain... I wonder tho,,, have you been diagnosed with RSD????? But hot towels willl help most people... But not all. PAIN affects everyone differently.. All of us are at different levels of pain an disease also.. I am hoping that you can get relief from the pain... U may want tooo ask your doctor about """Tomapax"""""" less side affects with that one.. Most of antidressants willl make you gain weight.. And most drs.. do not know how too treat pain.. That is sad part of all our beasts we suffering from... I am sooo sorry that this is not the news anyone wants too hear or read.. Reason we all need tooo vent at times.. But unless you have RSD,,, u cannot imagine what we are suffering neither..I have also severe rhumatoid autheritis,,, an oesteo. that has taken bones out of my feet..... DRS do not know what too do with pain neither.. I do not want too stay knocked out all the time.. I need too be able too function mentally. Sometimes that is hard for most of us.... SO please know we do understand...... annie |
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| | | From: Kramer | Sent: 7/15/2004 2:06 AM |
Hi all,just wondering among amongst us all,is there anybody here with a diffuse axeonal head injury as well? thanx Judd. |
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hi hope u get this i to have rsd i have had for many years plz email me so we can chat.  |
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Thanks for the email missy
i was diagnosed with rsi about 2 weeks ago but i have been suffering for
about 3 yrs
last week i was told i need surgery so now i am freaking out
i hope to chat with you soon
>From: "EnjoyableMissbrat" <[email protected]>
>Reply-To: "RSD Helpline Support Group"
><[email protected]>
>To: "RSD Helpline Support Group" <[email protected]>
>Subject: Re: Hi all from NZ
>Date: Thu, 15 Jul 2004 18:04:03 -0700
>
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