I don't have children of my own so I can't understand how if feels to have you child not understand, why the life they knew has changes.  I do know that as a child of a disabled father, my brothers and I eventually came to understand that life as we knew it was  now different.  Eventually, after several years we finally took to our "new lives."  Sure I wish my dad could have gotten out and did more with us, but we included him anyway we could in the activity even if he couldn't attend with us. 

I know how you feel about being young and having the active life you so loved taken away from you.  I am 28 years old and have had RSD for almost 2 1/2 years now.  Thankfully, my husband and family are great and also include me in things even when I am unable to attend.  I know that the life I once lived is no longer, but rebuilding a new life is even more difficult because we as humans still want what we once had... it is human nature.  My mind wants to do things that I once did, but my body doesn't.  So as hard as it has been, I have had to learn to pace myself and take frequent breaks from whatever that activity may be... regardless of the intensity it may be.

Your frustration is very justifiable with such a horriable disease.

I hope this helps.

Mommazsunshine2