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RSD Questions : questions
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Reply
 Message 1 of 6 in Discussion 
From: MSN Nicknamemirage_angel_hope  (Original Message)Sent: 5/20/2003 9:51 PM
Hi guys have a question hope it makes it to this page.I will be the first to use this page.
I was just put on neurontin and am having some side effects was just wondering if any of you have been on it and if so did you have some side effects.Neurontin seam to make me confufed and it seems to affect my vison as well I started shaking.No one seem to be able what are the normal side effects.I would really  be thankful to any help you can get me thanks
mirage.


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Reply
 Message 2 of 6 in Discussion 
From: MSN Nicknameim2stubborn2quitSent: 5/21/2003 5:40 AM
Hi Mirage
Thanks for the question. I know that one of the side effects of neurontin is memory loss. I know that my short term memory is not what it used to be because of the neurontin.
 
Other symptoms are dehydration and weight gain. When I find my drug book...my grandson has my house looking like a disaster area right now...I will be sure to post the other symptoms for you.
 
Be very sure that you increase your intake of water because dehydration can be a serious condition if not treated properly and quickly. Also make sure you keep a watch on how often you are making a bowel movement. If you find you are slowing down in that area you need to look into a stool softener. Also if your urine becomes really yellow that is a sign of dehydration so increase fluid intake immediately to help stop the progression, if that doesn't seem to help call your doctor immediately.
 
I hope that helps
Janine

Reply
 Message 3 of 6 in Discussion 
From: MSN NicknamesueinpainSent: 5/22/2003 7:00 AM

HI HONEY,SUSIE HERE.YES IT CAN MAKE YOUR VISSION WORSE,YOUR SHORT TERM MEMORY,LOSE OR GAIN WEIGHT.I DO NOT DO WELL W/DRUGS,SO I WAS PUT ON A VERY LOW DOSE AND THEN WENT UP.MEDS AFFECT PEOPLE DIFFERENT.YOU CAN CALL THE DRUGEST AND ASK THEM HON.OR IF YOU NEED I GIVE YOU ALL DIFFERENT SIDE AFFECTS.LOVE TO YOU~SUSIE.P.S.FELL FREE I AM HERE FOR U!



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Reply
 Message 4 of 6 in Discussion 
From: MSN Nicknameannie57011Sent: 7/31/2003 3:23 PM

HELLO sweety,,, sorry took me so long,,, as I been having troubles with msn,,, got it back on good puter now!!!  question about neurotin,,, it does  cause vision problems. an shakes also!! There are now big  alegations about the company that puts out neurotin also.  I am going back an forth to Denver for testing as with the shakes,, has gone too out of control spasms.  As I have  cut the doses down of neurotin,,, now seems like my mind is coming out of fog also able too think more clearly!!!seems like i also have a little more energy!!! They are not sure what all the side affects are on neurotin,, it is sure is rotten on us that is for real. I have been on it now for a little over 4 yrs. I would be asking the dr. also about the  *** new screams about this drug*** IT can also cause severe   mood swings also!!   I will let you all know more about all that I find out from the drs and testing they are doing on me also as I find out. I go back too Denver next week. As always be careful of  all meds an the side affects. I know  it is hard for us. But one secret too keeping pain under some kind of control is not letting it get too bad or severe. It sure does not help going in to dr office  saying we having a  good day when we are at high peak of pain!!!   huggerzzz too all  annie


Reply
 Message 5 of 6 in Discussion 
From: MSN Nicknameim2stubborn2quitSent: 7/31/2003 10:26 PM
Thanks for the info annie. The doctors have changed my meds from Nuerontin
to Topomax and let me tell you it is working out great for me. I take lower
dosages, and have the same pain relief I was getting from my mega doses of
the neurontin. I am also finding fewer side effects from this drug as well.
I am not saying that it will work for every one but I know that it does seem
to be working for me. I am also losing weight which is wonderful. I am no
longer 5'3" and 172 lb....last weight check was 166 and falling. My weight
gain with nuerontin was horrible as it has been for my mom and my sister
(the are on it for other reasons).

As for the shakes I am not nearly as bad with those either. The ones I do
get are strictly from the RSD (only on the affected side). I don't get the
bad headaches any more either. Vision wise I am no better off but then a lot
of my vision may be the fact that I may have RSD on both sides of my face.
Yes gang something I have not had the chance to tell you all yet.

Many of you know I had to have some tests run to determine if I had glaucoma
or RSD in my left side of my face. Well the tests are looking like RSD in
the left side of my face. Now my hair dresser is saying she is seeing things
that are pointing to signs of RSD in the right side of my face as well. I
have also noticed some changes in the right side of my face as well. I have
pins and needles and burning in my face a lot and a lot of spasming and
such. Oh well seems to be the story of my life. There are a lot of other
things going on too which is why I am not on a lot. Hang tough and I will
return to myself and get you all caught up. Your leader has not abandoned
you, just taking a me break for a little while.

Luv and hugs to all

Janine


>From: "RSD Helpline Support Group" <[email protected]>
>Reply-To: "RSD Helpline Support Group"
><[email protected]>
>To: "RSD Helpline Support Group" <[email protected]>
>Subject: Re: questions
>Date: Thu, 31 Jul 2003 07:23:45 -0700
>
>-----------------------------------------------------------
>
>New Message on RSD Helpline Support Group
>
>-----------------------------------------------------------
>From: annie5701
>Message 4 in Discussion
>
>HELLO sweety,,, sorry took me so long,,, as I been having troubles with
>msn,,, got it back on good puter now!!! question about neurotin,,, it does
> cause vision problems. an shakes also!! There are now big alegations
>about the company that puts out neurotin also. I am going back an forth to
>Denver for testing as with the shakes,, has gone too out of control spasms.
> As I have cut the doses down of neurotin,,, now seems like my mind is
>coming out of fog also able too think more clearly!!!seems like i also have
>a little more energy!!! They are not sure what all the side affects are on
>neurotin,, it is sure is rotten on us that is for real. I have been on it
>now for a little over 4 yrs. I would be asking the dr. also about the ***
>new screams about this drug*** IT can also cause severe mood swings
>also!! I will let you all know more about all that I find out from the
>drs and testing they are doing on me also as I find out. I go back too
>Denver next week. As always be careful of all meds an the side affects. I
>know it is hard for us. But one secret too keeping pain under some kind of
>control is not letting it get too bad or severe. It sure does not help
>going in to dr office saying we having a good day when we are at high
>peak of pain!!! huggerzzz too all annie
>
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Reply
 Message 6 of 6 in Discussion 
From: MSN Nicknameannie57011Sent: 10/18/2003 12:32 AM

Well I have  been back an forth too Denver several times, I am still being tested!! I am now  also off neurotins,,, WOW  am I also glad!!  THE side affects of the neurotins is still there, Could be for some time way the drs are talking... Delaying the  needed surgery!!!!  One other thing the drs did tell me also,,, was neurotins pulls down the aminuity system as well which we certainly do not need!! HUGGERZZZ!! 


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