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| | From:  katie1014011 (Original Message) | Sent: 7/11/2006 8:30 PM |
Hello everyone! I have been suffering from RSD for nearly 6 years now, and am thankful to have just found this this online support group! However, I am also looking for a tele-support group - where people with RSD and other like "illnesses" can call in at a specific time and talk about what they're going through, and what they've found to be helpful - where we can all support eachother, learning & growing along the way. Does anyone know of such a group? If not, would anyone be interested in coming together with me to form such a support group, &/or be interested in calling in and being a part of such discussions if one is created? I look forward to hearing back from you! |
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Katie, I don't know of any phone groups, but I do know there are support groups in your area. You can find on almost all the RSD sites such as; NINDS.com, RSDHope.org. If you need to talk on the phone, I have free long distance in US and 3 way calling. So e-mail me at [email protected] and I would love to talk to you. Maybe others will also join in. We are starting chat sessions probably next week. I'm not sure on the days, waiting for some people in the group to get back to me on it. But the times will be 9-10p.m. est. Tuesday, Wednesday or Saturday, I asked everyone to give me 2 days. So let me know if you are interested in that. Take care Kim (assistant mgr).
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{{{{{{{{{{{{{{ Katie }}}}}}}}}} Thanks for joining the group. Just found your message. Sweety,, I am looking to start a group up in Nebraska also. for educating n support. yea,,, getting a dr. invovled in talking with us answering questions would be superb for certain. I know a company is doing this with thier contractors also. WOwow,,, there is certain possiblities with that one. There is no kind of support working in Nebraska at all. I have been looking around. Uggzz this state is soo ignorant in so many areas. Sooo many areas it is just a hick state. Shamed too be associated here. I have found drs are working with me here. SO I am staying put cause of this also. I am questioning of the RSD is spreading also now. Noone has answers for this here yet. Who knows it will take people like us to get the information n educate the people. I have really started this process tho.. So let me know if I can help in anyway. I will dod all I cantoo help. I do understand we have alot to deal with.. But it is sticking together,,, n supporting each other to get us thru all of this. Please know that I am here for the looonggggg loonggg haul. LEt me know if you have yahoo or msn messongers,, I have both. Stay signed into also.. Talks soon,,, Keep posting. Keep on moving on. annie |
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{{{{{katie }}}} do you have messenger?? I have yahoo n msn both dear one. I will be happy too talk too you anytime.. Leave message here I will be happy too help anyway I can ,,, N sure would join you . I have free anytime minutes so time is nothing. Just getting together is when.. Let me know will be happy too meet you n talk too you on messenger n phone both dear one. annie |
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