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RSD Questions : Neurologist Appointment
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 Message 4 of 10 in Discussion 
From: MSN NicknamePhillip99621  in response to Message 1Sent: 6/27/2008 3:52 PM
Hi there. I've actually had everything that you're on/going through. I've been on lyrica, I currently take dilaudid and I also have as you have read from my posting yesterday probably, 2 epidurals.

I personally started lyrica and cymbalta at the same time, and because of this, I didn't know which one was working, until after about 6 months afterwards when I was able to drop the lyrica like a bad habit....instantly with no side effects. However you may/may not know that cymbalta isn't the same way. I also have to remind you that what doesn't work for myself or someone else doesn't mean it shouldn't work for you. We're all different, we all react differently to different treatments etc.

I would urge you not to be scared but to keep an open mind on what you are going through soon with the medication changes and the epidural procedure. These are things that are an attempt at making your situation better, not to hurt you.

I suggest as I do, keep a detailed pain journal or log of your medications that you take daily, how much, what kind, and how you feel etc etc. as it will help note any changes in your body/habits, or any potential side effects are much more clear when everything is documented.

As far as dilaudid, I take that now. I actually started on fentynal patches when I first contracted the RSD/CRPS that I deal with now and was taken up to such a high dosage on those and percocet together that the dosages weren't working anymore. I ended up having to get off of them for a while and afterwards I switched pain doctors and actually started on narcotics again. I use oxycontin as a baseline medication, meaning I take generally the same amount of medication a few times /day and I use the dilaudid/Ibuprofen and if needed I'll switch it up with percocet for my break through pain.

For me, the oxycontin is great for longer periods of pain relief, as it takes too long and isn't quick enough when I have break through pain, which I actually seem to have a lot of for many different reasons. That's why I needed to get to the percocet/dilaudid. Yes, over time I slowly build up more and more resistance/tolerance to the narcotics, but it's something that I tightly control/keep track of so I can manage to get the best results from taking the medication/narcotics. I don't think there's really any other way to do it other than this because I sure don't like the side effects or the "dopeyness" that comes along with them at times.

I wish you good luck with your epidural procedure, and we're here for you! Believe me, I read here much more than I post...but knowing that I'm not alone and that people are going / gone through similar things than myself makes it much more easier to deal with and except.

Take care, and have a great day!

~Phil


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     re: Neurologist Appointment   MSN Nicknamefranknberrie  6/27/2008 6:28 PM