Janine

 

  good day to you and yours.  Thank you for that wonderful welcome to your group and I'm so thankful you have started the group it has helped me understand that the symptoms that I have been going through is part of the condition and I'm not going crazy as my doctor would like to think. being in the north means isolation. I am todate the only RSD suffer that I know of in the territory. I'm sure though that there are more people have it they just don't know it. doctors up north are very unaware of this disease as a matter of fact mine had never heard of it and she is not the only one the other doctor went to in town hoping she could help me because shoes from Brazil had never heard of it either which meant I'm still at a loss for Dr. I did however go to Vancouver and that is where was diagnosed with RSD I have had several surgeries on my left wrist and that is what caused the RSD it is now into everywhere I am not completely immobile and hope I never will be however we all know the truth I just hope and pray that there is a cure found and that is why I am so glad I have found these groups and I'm very happy that you started this one.  I would like to start one in the you can't somehow have any suggestions ?I also would like to talk to newspapers and town here and ask if they will donate a spot in the paper for RSD awareness month so as I can put out the information of a RSD and hopefully get the word out and maybe some more donations for research which is desperately needed.  I am willing to help you if you need any so please do not hesitate to call as we all need to do this together or it will not work.

 

I must go as I am not able to sit and more in this chair I need to get a laptop so was I can sit in comfort then be able to chat as this is become my best friend sounds pathetic but it's true.  I would like to talk with you so please call me. my chat address is the same as my e-mail address.  Look forward to hearing from you and in the near future. take care of you as best you can.

 

gerrilynn