MSN Home  |  My MSN  |  Hotmail
Sign in to Windows Live ID Web Search:   
go to MSNGroups 
Free Forum Hosting
 
Important Announcement Important Announcement
The MSN Groups service will close in February 2009. You can move your group to Multiply, MSN’s partner for online groups. Learn More
RSD Helpline Support Group[email protected] 
  
What's New
  
  Welcome  
  Message Boards  
  General  
  Group Rules  
  Welcome Newbies  
  Our Toolbar  
  Monthly Check In  
  NEW CHAT ROOM  
  Kid's Introduction Page  
  RSD Intro's  
  Coping With RSD  
  FAMILY INTRODUCTIONS  
  RSD Questions  
  ADVOCACY PROJECTS  
  RSD News  
  A Laugh A Day  
    
  Pictures  
  Poems n Such  
  Healthy Recipies  
  Workman's Comp  
  RSD an Pregnancy  
  Help Wanted  
  Prayer Request  
  Caregivers  
  
  
  Tools  
 
Welcome Newbies : yepper .. a newbie ...
Choose another message board
 
     
Reply
 Message 1 of 2 in Discussion 
From: MSN Nickname4timesamom  (Original Message)Sent: 7/26/2008 7:56 PM
Greetings to all .... found this site about a month ago and didn't jump right into actually participating because i was certain i must be in some bad dream ... the Dr.s had to be off ... afterall ... a AM "super-mom" who can defeat anything and never has given into "weakness" .... Ya know ... 4 babies, no meds what-so-ever ... cancer ...( licked )... former "drill-sergeant" dance & aerobic instructor ... single mom, working from home, able to provide and make ends meet, paying bills on time .... Sunday School teacher ... Sign Language ministry ... friend, counselor, etc. ... etc .... i can do - and forge - myself through anything!! ...... or can i ????
 
No! This cannot be happening to me! I have no options but to continue on with the zaniness of my life ... I have 4 children who depend on me! (Well, 3 little ones ... my eldest is on his own now and trying to help mom) ...Surely, prayer, a few added vitamins, herbs, consult with a Chinese guru ... sheer guts and determination can make all of this go away! .... no need to jump right into a forum i would probably not be able to relate to ... afterall ... i must be mis-diagnosed!
 
It's been 9 weeks now and i am succumbing to reality ... i gave in and had my first stellate ganglion block this past week ... for about 3 hrs i had a little more flexibility, then it went back to status quo ... the burning is now a 9/10 ... 10/10 .... can't escape it ... Doc says we must be aggressive with treatment, so block will be done 2 x wk ... i had to laugh ... Doc repeatedly asked during 1st block, if i was okay and i would simply mumble an "uh-huh" ... He wasn't satisfied with that response and kept asking me over and over if i was sure that i was okay ... lol .... i finally quietly replied that i was simply deep in prayer, to please stop asking! ... i needed God to be directing that needle that felt like it was going to rip through the back of my throat at any moment! ... i was also so wanting to reply, "Sure doc ... this is your everyday position ... lying flat on your back with a needle going into your neck! ... NO, I'M NOT OKAY!" ... lol ...
 
Anyhow, forgive my ramblings ......... while my hope is in the Lord, i truly believe He is nudging me to nestle where others are enduring the same nightmare and to spend some time with those earth angels He already has in place ... After hopping around a bit, i have already been blessed by encouragement exchanged by others here .... i look forward to getting to know those who come here seeking hope and strength to face a new day ... wisdom from those of you who have bravely battled RSD for too long and have much to share ...
 
My simple prayer right now is for me to be the mom i need and desire to remain ... in spirit ... in provision ... and attitude .... i pray earnestly each day for the pain not to steal my joy ... i catch glimpses of a grumpy-monkey trying to take over when the pain is incessant (which is most of the time now) ... i hate this for my children .... So. for all of you who are prayer warriors ... please add me and my children to your prayer list and i, of course will be adding each of you to my fervant prayers ... my trust is that "through Christ, truly, all things are possible!!!!" ............ blessings to all .... In His Grip ...


First  Previous  2 of 2  Next  Last 
Reply
 Message 2 of 2 in Discussion 
From: MSN NicknameTami62Sent: 7/31/2008 4:41 AM
Hi there,

Oh my goodness, 4 children. I only had two and I was wore out all the time. I admire those who have larger families than I did. You are stronger because of it and it seems like you have a closer family when you have more children too.

Your sense of humor is awesome! Don't loose that, it will help you get through it all. Your faith is going to be your strength. Gather close to good friends and family for support when you are at your worst. You will need that. Cherish every good moment you have to balance out the bad ones and just be honest with the little ones so that they understand that your pain is the reason for grumpy monkey and its not because of them. Kids adapt very well to things when they understand what the needs are. Tell them you love them often and hug them as much as possible and laugh with them even when you don't feel like it even if only for a few minutes.
This new life change is going to be challenging and hard to deal with at times. You will not be able to do it alone so make as many supportive friends as possible and take advantage of as many resources as you can find.

You can vent here anytime and make friends and have the support from others who understand. I am so glad you found us.

I hope your next treatment goes better and you get some relief. You have a better chance of it working since you are probably in the first stages of this. Let us know.

You are in my prayers.
Tami