I just wanted to welcomer you to our little family.I'm sorryu you have this horriable conditioon.Unfortunly you are right not muxch is known about the conditioon certain no one does doesn't have it knows what it is they look at you blankly but I'm hoping that will change sometimes soon.Looking forward to hearign more from you

take care

love mirage

tina, welcom, to the gruop!

 

 u ar rigt not muny prople now of it, but thigs are chaging, last decemer in michagan thay pases a law about rsd publiic awarness. evry ageny that deal wiiths peopl wiil be knowelged. its LAW!  

normalee