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Hi Serenity and welcome to the family. My name is Janine and I am the founder of this little family. I'm sorry I haven't welcomed you sooner but I am in the process of moving and I have been away from a computer for a while. It will continue to be sporadic for some time yet as far as my being online but I will get back with every one as I can.
I and every one else here understand what you mean when it comes to others lack of understanding of this disease and the lack of information out there on this disease. I did countless hours of research trying to understand what was happening to my body and why only to find myself more confused than I was when I started out. I agree with Aimmee that the best thing is a good pain clinic to help you through all of this. The best thing that happened to me was my pain doctor and the neurological medications that he put me on. Since he got me on the nuero meds I am once again walking and without my cane. I am not pain free but I am pain tolerant. The number of pain meds I am taking have decreased and the level of opiates are way down. I am no longer on the heavy hitting stuff (methadone) and take very little of the low dose stuff (percocet). It has to be bad for the to even have to take a muscle relaxer. My hat goes off to my pain doc.
If you ever need to talk just feel free to email me at any time. I will get back with you as quick as I can. It may take me a bit right now but as soon as I get into a permanent place I answer really quickly.
Janine [email protected]
PS Feel free to use the links I have provided on the website for referencing information on RSD. I tired to put only the best stuff there. If you have any sites you would like to suggest feel free to email them to me and I will look them over for use on the site.
"Winners Never Quit and Quitters Never Win"
>From: "RSD Helpline Support Group" <[email protected]> >Reply-To: "RSD Helpline Support Group" ><[email protected]> >To: "RSD Helpline Support Group" <[email protected]> >Subject: Hi! >Date: Thu, 9 Oct 2003 00:46:40 -0700 > >----------------------------------------------------------- > >New Message on RSD Helpline Support Group > >----------------------------------------------------------- >From: Serenity_® >Message 1 in Discussion > > > > Hi everyone my name is Cindy aka Serenity. I am a 43 yr old happily >married lady with three children, and I live in Ontario, Canada. I was >diagnosed with RSD just this last April, and I am having a bit of a hard >time with it. I was so happy to find this place, it'll be great to meet >people who are in the same boat as I am. So many people have never heard of >RSD, and it's a little frustrating trying to explain it to them. I do know >though that I would never wish this on anyone. I look forward to getting to >know all of you. (((((hugs))))) > >----------------------------------------------------------- > >To stop getting this e-mail, or change how often it arrives, go to your >E-mail Settings. >http://groups.msn.com/RSDHelplineSupportGroup/_emailsettings.msnw > >Need help? If you've forgotten your password, please go to Passport Member >Services. >http://groups.msn.com/_passportredir.msnw?ppmprop=help > >For other questions or feedback, go to our Contact Us page. >http://groups.msn.com/contact > >If you do not want to receive future e-mail from this MSN group, or if you >received this message by mistake, please click the "Remove" link below. On >the pre-addressed e-mail message that opens, simply click "Send". Your >e-mail address will be deleted from this group's mailing list. >mailto:[email protected]
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