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Welcome Newbies : Watching Daughter in pain
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 Message 4 of 9 in Discussion 
From: MSN Nicknamemirage_angel_hope  in response to Message 1Sent: 11/21/2008 3:55 PM
welcome to our group
I have this from a slight different perspective.I got it when I was 10 years old or what were tjhe beiging  of and really bad rsd at 14.You lose everything that matters when this happens to you and you want to take control over something.14 year later I still have issue when doc insist on they things without dicussing it. orders don't work.If you haven't done so I think that talking over her condition and treatment just you and her may help the attitude.I
I know it killing you but try to give her some choices like stop taking certain meds.When I did the meds they made me , sick and I couldn't be me at school anymore and it killed me a piece at a  time.I know you don't understand but try to think of how you'd feel if you lost you happyness and felt that you body no longer belonged to you and then had people telling you what was best when they didn't know how you felt.
I know you are trying and it obvious you care very much for her but you have to try and see where she coming from to help her.Talk to her take her out for a couple hours and not mention it she may be acting this way because she might think this is the only thing you want to talk to her about and not the rest of her regardless of wheather or not it is true
my email is in the group list should you or your daughter ever need it let me know either email or drop me a line here
.There are other young member on these boards that might share there veiws with you.I just wanted you to think that she not bbeing diffcult with cause .She is trying to battle this anyway she can just like you are
and thank you for coming here trying to help her
mirage
take care