Smiling Fibros

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{{{{{Family}}}}} I know we don't all have fibro but even if you have a chronic pain syndrome or are a care-giver I'm sure you have noticed how we get treated....maybe if we could get enough stuff to make this a good and complete (as possible) we might be able to do something with it!

ps....maybe it could make a difference.....is there anything you can add??

**It ticks me off when I go into a public restroom it never fails that someone with kids is in the "handicap" bathroom and I have to go urgently!! My wheelchair won't fit into the regular stalls!! **

***It also ticks me off when there is one handicap space left and another car pulls in and I see a family or a bunch of teens unload out of the car and no one with them is handicap but they sure are quick to put that placard in their window!! ***

1.) just because I look normal doesn't mean I am

2.) it's awful that friends and family pull away because they don't know how to help or fix this problem

3.) it's worse to have so many ignorant doctors making so much money to make us feel worse

4.) that SSD pays us pennys to live on--no wonder some on retirement and/or disability eat cat and dog food....we don't get enough to even cover rent let alone utilities-food-soap-toilet paper

5.) that some of us have high costing meds and that medicare--even with the bill that Bush signed--isn't going to pay for those meds

6.) that real hugs are wonderful but when you pat me on the back it feels like I am being slammed with hammer

7.) I'd like to yell and scream at all of those people who don't-won't work!!! I'd give up almost everything to go back to work!!!

8.) that while I am in my wheel chair---it seems like people who are walking go out of their way not to look at me--not to have eye contact

9.) that I am still a human being--that I still have feelings

10.) that fibro is as debilitating as Lupus-MS-AS-ALS-CFS- and so on....we deserve the same attention--the same amount of research and attention!!!!

1.) just because I look normal doesn't mean I am Who said you looked normal?

2.) it's awful that friends and family pull away because they don't know how to help or fix this problem or are they telling your how to get more exercise, and don't eat that piece of cake or you'll get worse?

3.) it's worse to have so many ignorant doctors making so much money to make us feel worse or don't give a toss about our symptoms and say it's all in our head.

4.) that SSD pays us pennys to live on--no wonder some on retirement and/or disability eat cat and dog food....we don't get enough to even cover rent let alone utilities-food-soap-toilet paper and then they don't report the poison in the cat/dog food.

5.) that some of us have high costing meds and that medicare--even with the bill that Bush signed--isn't going to pay for those meds but they can waste so much on a stupid war and not do anything for those suffering and are helpless to better their lives

6.) that real hugs are wonderful but when you pat me on the back it feels like I am being slammed with hammer and then they get offended, and you lose even more support.

7.) I'd like to yell and scream at all of those people who don't-won't work!!! I'd give up almost everything to go back to work!!!to regain the dignity in our lives

8.) that while I am in my wheel chair---it seems like people who are walking go out of their way not to look at me--not to have eye contact like you've lost your intelligence

9.) that I am still a human being--that I still have feelings except that you feel too much, too strong, too painful and I'm not even getting the the body

10.) that fibro is as debilitating as Lupus-MS-AS-ALS-CFS- and so on....we deserve the same attention--the same amount of research and attention!!!!Until it affects politicians themselves it doesn't matter, it's not the "in" disease yet

I hate it when it looks like "healthy" people are abusing the handicapped placards and other things but I always try to remember lots of problems are invisible. Maybe one of those healthy teens is not as healthy as they look. It is hard to keep thinking that way but on those rare days when I don't "walk funny" and still use my placard I want people to know I am not abusing but I only have so much energy. I need to give that to all of those others using the placards if I want that respect.

Important Announcement The MSN Groups service will close in February 2009. You can move your group to Multiply, MSN’s partner for online groups. Learn More
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