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Name	From	Had Transplant	Current Status	Updated
Bridget	Syracuse,Ny	No	Under 50%	1/17/2004
JuJu2	East Tennessee	on transplant list	started dialysis-Jan 7,2003	1/18/2004
Gdy2shu	Fort Gibson, Ok	yes 11-29-04	He is doing great!	12/26/2004
bob-wade	Indiana	02/13/2004	2+ years post transplant	8/8/2006
N2the90s1	Flint, Michigan	no	started peritoneal dialysis Jan. 2004	1/23/2004
socrateswasright	Birmingham, Alabama	No; on UNOS list since Jan 5, 2004	Reached ESRD toward the end of May; began CAPD on May 27. Our dear friend Bill died on September 21, 2005, we will all miss him.	9/22/2005
HillbillyBrenda	Massachusetts	no	Brenda has gone home to the lord. God speed good friend..we all shall miss you deeply	7/18/2008
hopnrocks	Dundee, Oregon	7/28/03	doing pretty good	2/24/2004
bettyrubble97		No	Have 1st Neph. appt. 3/9/04	2/26/2004
sweetpea7419	Rio, West Virginia	No	100% Function	3/3/2004
Trish9100	Northern Virginia, work in Washington D.C.	9/1/00	Working full time and getting better everyday	3/22/2004
suzq	Machesney Park, IL	donated to husband 5-6-02	counting our blessing- no problems	3/27/2004
Peter	Melbourne Australia	Yes but failed	Nocturnal dialysis at home	4/26/2004
nanarabbit2	tuscumbia, al	no;added to UNOS list 11/21/03	function down to 10%; not on dialysis yet	4/27/2004
Tozz151	Saskatoon, Saskatchewan Canada	No	25%-30% function	4/29/2004
tiredflowergirl	Cullman, Alabama	No	32-35% gfr; 2.9 cr	8/11/2004
carolinnj	North Jersey	No	@50%	5/6/2004
Melissa12	Manassas, Virginia	no/ trying to find a living donor	4.7 creatinine and 17 gfr	5/15/2004
REITA	LOUISIANA	no	25%	5/17/2004
LittleMothernurse	florida	3/30/1998	6 yrs. creatine .07	5/18/2004
Liz_d44	Massachusetts	No	~20%	5/26/2004
Maggie May	Edmonton,Alberta, Canada	No	Need removal prior to transplant	5/27/2004
nails3220	Courtenay, B.C. Canada	No	75% creatin levels at 2	6/8/2004
rsnbk	Batavia NY	no	50% kidney function	6/15/2004
artsyannie	Logan,Oh.	not yet	loosing function...	6/15/2004
julieh59	Battle Creek, MI	not yet	approx 25%	6/15/2004
DJL	Boston, Massachusettts	YES, 4/11/2002	Doing Great	7/2/2004
CarolG	So. Calif	8/92 & 8/97	Post transplant	7/14/2004
aciacchella	San Francisco, CA	No	100% function	7/22/2004
willow	Indiana	no	51% kidney function	8/2/2004
Aussie-Sandi	Brisbane Australia	No	Loosing function 75 % Dec 2003	8/12/2004
trelled	Saint Louis, MO	Soon to be on the list	Discovered PKD in 1982 when Dad did Hemo, I started CAPD on 9/11/2004 at 13% function.	9/22/2005
emju2			30% or less kidney functioning.	8/17/2004
Carolynnsmom	Upper Peninsula Michigan	No	Less than 50% Function as of Summer 2004	9/10/2004
dotsareforever	Birmingham,Alabama	3/28/99	doing well last dr visit: creatine .09	9/13/2004
hopnrocks	Dundee, Oregon	28 July 2003	doing fantastic	9/15/2004
monkeytlover	Winston, Mo.	no	25%	9/20/2004
grandma2bof2	Cleveland OH	1984 & 1996	on the list over 3 yrs.	9/22/2004
rene runt	San Diego	waiting	28to19% in 2 months	9/24/2004
Katie437	Sugar Grove, Ohio	Oct. 2, 2003 Failed	No Kidneys, dialysis waiting to get on list	12/12/2004
Enos760	Ala	Sept 01	well	10/6/2004
Rainbowcuti	Pittsburgh, PA	Scheduled 9-17-07	On hemodialysis and doing great	8/10/2007
crazy4tweetybird	Chesapeake,VA	NO	100 %	10/27/2004
SleeplessGremlin	Valrico Florida	No	good, now that i have found this site...	10/30/2004
AndyUK2	Ahoghill, Ballymena, County Antrim, Northern Ireland, UK	Not yet!	Age 30, still 100% function, high BP controlled by medication, life's still fun, not as active as used to be, guess that's old age!!	11/1/2004
Littletommi	New York	N0	50%	11/27/2004
Wendy19795	Hanford Ca	no	80%	11/28/2004
cmiller595	Central California	No	New Diagnosis 12/2004 -- Never Heard of PKD Before	12/24/2004
Grafreak11	Connecticut		Started PD on 12/23/04, on transplant list	12/27/2004
furniturerecycler	Cedar Rapids, Iowa	No	100%	1/4/2005
lances2022	Las Vegas	On the list 7/2004	On Hemodialysis 7/2004	1/11/2005
4genpkd	East Tennessee	No	28% 5.2 S. Creatine	1/24/2005
DiamondOnyx3	Originally: Syracuse, NY, Now: Valrico, FL	No	Doing Great	1/24/2005
LauraM	Bradenton, FL	No	As of 11/04 Creatinine 0.8 & BUN 9	2/23/2005
tgotts7685	Haltom City, Texas	Yes 12/28/05	Feeling good!	3/31/2005
gandalf6223	Fort Collins, CO	6/14/06 from living donor & friend	GFR: 1.1 post transplant	7/2/2006
rdejam	Tampa, FL	listed 12/04	creatine 9.1 ; no dialysis yet	4/4/2005
AZgloria	Casa Grande, AZ	nope but hopeful	started dialysis 2-15-03	4/5/2005
Shelley16189	Shelley	02-08-05	doing great	4/11/2005
Passionshay1	Brooklyn, New York		On Dialysis 3 times a week	4/15/2005
Monkeylover617	Winston, Mo.	No beoing interviewed and tested to be added to UNOS	20%	4/26/2005
robbysmom1981	IN	7/20/05	creatinine 1.1 praise God !	8/1/2005
bobbilee26	Indiana	no	living donoor trying to be	6/4/2005
ChareeDaisy1	The Rock Australia	no	30% Function	6/11/2005
Cutemolly72	Brandon, Manitoba	no	20 gfr	6/12/2005
Iris18491	Bronx, New York	no	Diaylsis 2 1/2 years	7/4/2005
Buffy7545	Willard, Utah	No I am the wife of pkd person		7/10/2005
Nucci1949	Los Angeles, Calif.	no/will look into it soon	approx. 10%	12/17/2007
aliammons	birmingham, alabama	no	declining function pain issues	7/28/2005
Madeinengland1328	uk	on my second transplant both from me brothers	every things going well	8/11/2005
ava	Texas	no	33% function	9/8/2005
BrendaLS6	Jobstown New Jersey	No	2.7/ 25% flank pain and feel bad!!	6/21/2006
tatu631957	illinois	no	creatinine 1.6, bun 22	9/19/2005
brainysoldierbabe	Traci in Texas	No	Still good kidney function but the pain is getting ever so much worse	9/30/2005
Toy	Ventnor, New Jersey	No	90% function	10/15/2005
BamaGrammi	Oxford, MS	No	almost 50%	10/16/2005
Bunnylove110996	UP of Michigan	no	100% function but lots of pain	10/30/2005
whitetaildeer2799	Kingston, Ontario	No	GFR 77;large liver	11/7/2005
cborin	Smithville,Oklahoma	no	100%	1/6/2006
SEHRN	Orlando, FL		1.3/20 painful cysts left kidney	3/5/2006
aliammons	birmingham, alabama	no	one kidney left (est at 9lbs), creatine 1.6, having continous kidney, liver, ovary and heart issues	1/29/2006
kopita28	staten island, ny	no	good kidney function	2/16/2006
a5foil	Richmond, VA	No	20%, getting on the list	2/17/2006
maryveli	Fair Oaks CA	No	100% kidney function, lots of painful liver cysts	2/19/2006
dramaticmezzo	Stockton, CA	No	72%. Large painful cysts on both kidneys. Bummer.	10/15/2006
Vs1	Cleveland, OH	No	25% kidney function creatnine 2.6%	3/12/2006
RMHMom	Cleveland, OH	waiting and hoping	starting PD next week; husband is good match - waiting for physical exam results	3/12/2006
cal	Indiana, PA	Yes 1/10/06	Great creatintine 1.3 still adjusting prograf	3/19/2006
pkdLin	NW NJ	No	On incenter hd almost 5 yrs.; waiting to start training for home hemo on the Nxstage machine	4/4/2006
Julie721	Battle Creek	not yet	hemodialysis since 3/06	4/16/2006
LINDASUE8	FENTON MISSOURI	NO	DOING OK	4/20/2006
kidney_joe	Utah	not yet, on list and possible live donor	started hemo on 11/02	5/1/2006
cah-1	Arkansas	No	100% function, kidneys hurt a lot	5/4/2006
bgraham_66	Ontario, Canada	No	25-30% kidney function	5/26/2006
onesicpuppe	Ohio	No	18%	5/31/2006
1mike_01	Indianapolis	yes	Kidney and liver transplant 8/23/06	9/22/2006
tiki-t	San Jose, CA	No	60% function, Kidney are both 2x normal size	6/2/2006
Hans	The Hague, Netherlands	07/2002	Doing good, creatinie 1.06, minor problems High Hgb and polyneuropathy	6/18/2006
buglady81	pennsylvania	no, large liver and kidneys	good	9/27/2006