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Tyler had another CAT scan today. Even though I may have been a little upset by it, Dr. Yablon was not at all. In fact, he said there was nothing there that he was not already aware of or did not expect to be there. There is still some fluid at the injured area and we still have left over fluid and /or blood deep in the brain. They are not describing Tyler as in a coma anymore but in a Minimally Responsive State. Dr. Yablon told me tonight that Tyler is responding better and showing signs of improvement more quickly. We still have a very very long way to go. The fluid will absorb and the bruising will continue to heal. All of this healing will give us better indicators of Tyler's condition. Unfortunately, that take time, a long time.
Tomorrow they will do some testing called "Evoked Potentials'"....they will do a battery of test intended to objectively evaluate nervous system functions related to sensation, cognition and production of movements. They will evaluate integrity of the nervous system pathways involved in vision, hearing and body sensations, using specific stimulus. This testing takes 2-2 1/2 hours and may be done through Friday.
We are in a research center, just where we wanted to be. Tyler is also starting on another type of research tomorrow. All of these tests are safe. I ask the Dr. if he would do them for his child if the roles were reversed...without hesitation he said yes. Shawn and I agreed and we are moving on. So, in our covered wagon we trudge on......into the unknown......
The brain is an amazing organ and because of the differences in every humans brain there are differences in the healing process and how the brain will heal and function after a traumatic brain injury.
All in all, Tyler is improving each day and showing quicker responses. They are changing his tube feeding to slow feeding over a 12 hour period and water during the rest of the time. Hopefully, this will help with nausea. He still is running a slight temperature and as long as he does that he will not be able to get the trach out.
His cousin Westley and his girlfriend Melinda came to visit today. It was tough for them but it sparked Tyler up. He recognized them both and responded with his thumbs up. He made some sounds in response to them as well. He is so trying.....we just have to keep on praying and praying. I keep telling Tyler to pray too!
Oh, Tyler is getting better with his kisses....he even makes the kissing sound now when he puckers up.....it is so sweet and I love it, it is spontaneous when I put my lips next to his cheek. He also will sign " I love you" without me asking him.
Pretty special....even though he is locked up in his mind right now.....you can see he is aware of things around him, just unable to communicate with us right now and unable to communicate with his body. We are staying completely faithful and the staff here believe in miracles. They said they see them all the time. We will have a miracle with Tyler....I know this. I feel it in my soul.....God's has a plan for us and Tyler will be back as our Tyler when God is ready for him.
Love you and thank you for your prayers and support and such wonderful and beautiful emails back to us.......thank you. I just never knew......
Love
Alecia and Tyler
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