this disease sucks they said about 4 yrs. ago i will not live 6 months well everything is dead inside and does not work but at least one does lol, i am a cheap date, i am on only liqiuds once in awhile a real meal but i am still going, they do not know how to treat it and if i got it as a kid i would of been gone by know but since it happen at 33 yrs. old they do not know, i went to the mayo clinic in minn. they were great and some nice looking doc's but everyone was so great and treat me like someone, i felt like a queen all you have to pay for is you hotel bil,lot's of money if your there long but the weather stays at 75% and it was just great, althougth all the girls were alittle bigger then me, i am a twig, i wish i had there meat, but space it out in the right places, lol dream on, i stuck with this one, ....i have 3 kids of my own and raised 2 from a marriage so 5 all togather,  they still come see me, with out there dad hear , but anyways, i am just happy to be hear every day and have no room to feel sorry for myself peed off but well what are you gonna do, i try to live life to the fulless even if tends me in  the hospital, for over doing it, but that is a vacation my rest one, then the other i go...go..go.. you will findind me taking walks at 2am just because i cannot sleep why sit there,or i will rake leaves or clean up out side whatever, go dancing when i can what ever, well i do  not  want to write a book ......