Disabilities Oasis

Important Announcement

The MSN Groups service will close in February 2009. You can move your group to Multiply, MSN’s partner for online groups. Learn More

Hey, I'm Tracey married to a wonderful man by the name of Brian and we have a precious 3 year old daughter named Shelby Lynn. We reside in Waynesboro,GA. My days are filled with joyous moments spent with Shelby. My husband and little girl are my life. I am a devoted Christian, wife, mother, & volunteer for the Center for New Beginnings- www.nbeginnings.org (our local non-profit Christian Center for the Special Needs) and also volunteer 1 morning a week at our Church's BiblePlaySchool Program. At the Center, I serve as the Parent Support Coordinator providing resourceful information to other parents as well as hosting monthly Parent Support Group meetings where we as parents can come together to get away from life's everyday struggles as being parents of special needs children for just a brief moment.

Little More about Me........

My daughter and I both have a trach. We both have a rare syndrome, Osteopathia Striata with Cranial Scelrosis. This syndrome has several different names and variations. Abnormalities include: severe obstructive sleep apnea (which causes us to be tracheostomy dependent), very small nasal cavity/passages, hearing impairment, cleft palate, GI issues, very large bones (facial structure issues), dental issues, developmentally delayed,etc. Life span is normal there is no cure, and only a handful of people worldwide with it. I have had my trach for about 25 yrs and have done well if I have to say so myself. Shelby received her trach in 2006, she continues to thrive each day. I look forward to meeting others with similar backgrounds and hope to shed a little bit of hope and inspiration to others. I have posted our story in journal section to share a little hope,inspiration and know that God is Good All the Time. Please visit Shelby's page for current family updates: www.carepages.com page id: babyshelby

Hey, I'm Tracey married to a wonderful man by the name of Brian and we have a precious 3 year old daughter named Shelby Lynn. We reside in Waynesboro,GA. My days are filled with joyous moments spent with Shelby. My husband and little girl are my life. I am a devoted Christian, wife, mother,volunteer for the Center for New Beginnings- www.nbeginnings.org (our local non-profit Christian Center for the Special Needs) and also volunteer 1 morning a week at our Church's BiblePlaySchool Program. At the Center, I serve as the Parent Support Coordinator providing resourceful information to other parents as well as hosting monthly Parent Support Group meetings where we as parents can come together to get away from life's everyday struggles as being parents of special needs children for just a brief moment.

Little More about Me........

My daughter and I both have a trach. We both have a rare syndrome, Osteopathia Striata with Cranial Scelrosis. This syndrome has several different names and variations. Abnormalities include: severe obstructive sleep apnea (which causes us to be tracheostomy dependent), very small nasal cavity/passages, hearing impairment, cleft palate, GI issues, very large bones (facial structure issues), dental issues, developmentally delayed,etc. Life span is normal there is no cure, and only a handful of people worldwide with it. I have had my trach for about 25 yrs and have done well if I have to say so myself. Shelby received her trach in 2006, she continues to thrive each day. I look forward to meeting others with similar backgrounds and hope to shed a little bit of hope and inspiration to others. Please visit Shelby's page for current family updates: www.carepages.com page id: babyshelby

im just me love sports and music and computers, can teach people how to make sites and wanting to make a difference in my life ask for other info :) on msn messanger as [email protected]

I am a 100%service connected total and permenant Air Force veteran. I have a very supportive family of wife, 19 yo son $13 yo daughter who have been very supportive during my weeeks of hospitalization. I was diagnosed in 1991 and fought and finaly overcame the bueracacy of the very impersonal and slow VA system. I will never be able to work again for the rest of my life so I have my computer and TV. I hope to make new friends within this organization. Thank you for accepting my application

I know a blind person from school that I would like to become friends with. I also would like to learn to format letters in Braille.

Janie here! I am the wife to Paul of thirteen years and I have four sons. My two oldest have adhd and autism. Iam also living a life with limitations. I need to keep my stress levels low to prevent lupus flare ups. It is going to be wonderful to meet you all!

Be careful of what you say and do to others because what comes around go's around and it just may come back and smack you in the face. HARD!!!!

I was wondering if anyone else out here at this wonderful site has been injured in the spine by an epidural.The Dr's sure dont know alot about the effects,I am totally disabled by this & would love to talk to someone with simular experiance.I have searched the web high & low to no avail.Or if you just like to chat write me too..giggling...

Thanks & god bless all of you,

Would like to meet a lady within a normal driving distance,for posible long term relationship.

hello all & you also i'm a 36 yo man ive been hemi palegic since 94 wich meen's i'm paralized on half my body my left side in this case hope to talk to you later

single guy, 30, wanna make new friends... especially around dfw... chat w/anyone though. have a great day! ~Larry

TY FOR LETTING ME JOIN THIS GROUP!!

I WALK WITH CRUTCHES

I have really been enjoying being part of your group.

I am currently in transition as I try to go onto SSDI. I have worked with people with disabilities in some capacity for over 25 years. I am at a point where I must look at the wear and tear that is occurring with my own body, thus I am now looking at going on disability. I am hoping that the new free time will allow me more time with my family and friends, something that has been at a very low level while trying to work.

I am active in the local bicycling community as a United States Cycling Federation official. I am still able to ride my bike, though not as far as I would like, which keeps me active without wear and tear on my joints.

I have 2 wonderful children, and we are expecting my second grandchild any day now.

I suffered a minor stroke from a ruptured brain aneurysm I still have 2 left that at this point nothing can be done with them I hurt my back at work which caused 2 buldging disks @L1, L4 I love to chat and get letters. aneurysms run in my family Dad had 3 and stroked right after surgery I took care of him for 11 years till his death 5 years ago he was bed ridden my sister died 14 years ago for a ruptured brain aneurysm and my dads brother died the same year from the same thing

My name is keith, i was in the restaurant biz as management for over 25 yrs, now im disabled since 2000.

I try to help others out that is disabled or whatever they may need help with.

I make friends online since i dont get out much at all. hope to be of assistance to you all.

Need to know more about me just ask.

Was a long haul truck driver,

Cathy

I was hit by a drunk driver head on going 80 in 1974 and am a disabled vet, age 55, a long time writer, just a quiet soul. I try to help everyone I can. Because I have had IBS for 6 months my diet changed drastically and I hope my Cancer risks have been lowered! All one can do is try to eat healthy and hope for the best! I am for the most part pain free, having to wear 2 back supports 24-7 , but I am happy and that is all that counts. I wish you all a great day. If you like ghost stories feel free to drop by my author website at www.whendarknesscomes.com

If you have lower back pain, believe me, you do NOT have to accept that back pain. The 2 $25.00 back supports I wear help me to escape 90% or more back pain. I wear them 24-7 and hardly notice them. Mine came from wal-mart and you may only have to wear one, and perhaps your life will be better. I hope it will. If anyone would like to learn more about what you can do to help prevent Cancer, please e-mail me. I can e-mail you several files and you can be much more informed as to all the little things that will make a big difference in your health.

I'm a casemanager for United Cerebral Palsy Assoc. and I am just starting my new job this week, this is something I have had to do to help ny son, all of his life so far, and with the medicaid waiver he is living independantly out in the community with supports in place to help him. I would like to see others have this same opportunity for a quality lifestyle. If I can be of help contact me at: [email protected] , it is a pleasure to serve.

I am fairly new at living my life with limitations and haven't figured out what this all means to me. Everyhing wasimportant is missing in my life. I lost my independence when I was told I couldn't drive unless I have modifacation made to my car. I haven't been able to get this done so still stranded. I was a truck driver before this and spent my time exploring the country. Now I can't get to the store. I don't have my job anymore either. I was told that I can't go back. I look at job ads and don't know what I can do.

If anyone can help me figure out how to get through this and win I would like to here from you. I have so many feelings about this that I don't understand. The doctors said this was as good as it will get and discharged me. I just don't know how to life with with what I have to deal with.

After a difficult time adjusting, I decided to stop feeling sorry for myself and get on with living life to its fullest. I enjoy meeting new friends and would love to chat with any member.

Important Announcement The MSN Groups service will close in February 2009. You can move your group to Multiply, MSN’s partner for online groups. Learn More
Disabilities Oasis	[email protected]