Disabilities Oasis

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The MSN Groups service will close in February 2009. You can move your group to Multiply, MSN’s partner for online groups. Learn More

I joined this group specifically to gain and share info from experiences in the life of a person with SCI. I'm Kyle's caretaker and want to be as effective as I can. Any words of wisdom, advice or encouragement will be appreciated. Although my son is only 1 year post-injury, I've learned so much since he's been home. Specifically, I know quite a bit about wound care and the importance of good nutrition. I'm interested in any and all on-going SCI research, devices that could improve Kyle's upper body strength and/or stimulate the muscles he's not able to use, and any "coping" advice that would help Kyle and the rest of our family.

hi everyone just want to meet people and make good friends

I'm not the one to talk about me being brain damaged. It happened when I was born so it's extra harder on me to even think. I'm just saying thatbecause of experiences I have gone through, I would like to help. In other words, I'm there for you no matter what.

So glad to be included here. It's been a VERY long, painful life, but I'm still here and still willing to make the best life I can. I managed to give up career, family, friends, financial security when hit with CFIDS, and survived by finding other things that brought a sense of accomplishment and joy. Over the years the arthritis and "other ills" have slowly erroded away even that. Most recently, the Fibro (combined with the OA in all major joints) has rendered me nearly house-bound. I don't like it, and I'm having a hard time accepting this on top of the others, ya know?? Add to that a miserable personal relationship (we "own" a house together... long story) and life just ain't pretty right now. I really hope to gather information I can use for decision making.... but I also want to support, love, and encourage others. I've had a few wonderful "cyber-friends" that have held me up over the last few years... and I want to pass it on.

single guy, 30, wanna make new friends... especially around dfw... chat w/anyone though. have a great day! ~Larry

Hey, I'm Tracey married to a wonderful man by the name of Brian and we have a precious 3 year old daughter named Shelby Lynn. We reside in Waynesboro,GA. My days are filled with joyous moments spent with Shelby. My husband and little girl are my life. I am a devoted Christian, wife, mother, & volunteer for the Center for New Beginnings- www.nbeginnings.org (our local non-profit Christian Center for the Special Needs) and also volunteer 1 morning a week at our Church's BiblePlaySchool Program. At the Center, I serve as the Parent Support Coordinator providing resourceful information to other parents as well as hosting monthly Parent Support Group meetings where we as parents can come together to get away from life's everyday struggles as being parents of special needs children for just a brief moment.

Little More about Me........

My daughter and I both have a trach. We both have a rare syndrome, Osteopathia Striata with Cranial Scelrosis. This syndrome has several different names and variations. Abnormalities include: severe obstructive sleep apnea (which causes us to be tracheostomy dependent), very small nasal cavity/passages, hearing impairment, cleft palate, GI issues, very large bones (facial structure issues), dental issues, developmentally delayed,etc. Life span is normal there is no cure, and only a handful of people worldwide with it. I have had my trach for about 25 yrs and have done well if I have to say so myself. Shelby received her trach in 2006, she continues to thrive each day. I look forward to meeting others with similar backgrounds and hope to shed a little bit of hope and inspiration to others. I have posted our story in journal section to share a little hope,inspiration and know that God is Good All the Time. Please visit Shelby's page for current family updates: www.carepages.com page id: babyshelby

I am fairly new at living my life with limitations and haven't figured out what this all means to me. Everyhing wasimportant is missing in my life. I lost my independence when I was told I couldn't drive unless I have modifacation made to my car. I haven't been able to get this done so still stranded. I was a truck driver before this and spent my time exploring the country. Now I can't get to the store. I don't have my job anymore either. I was told that I can't go back. I look at job ads and don't know what I can do.

If anyone can help me figure out how to get through this and win I would like to here from you. I have so many feelings about this that I don't understand. The doctors said this was as good as it will get and discharged me. I just don't know how to life with with what I have to deal with.

I LIKE TO GET TO KNOW PEOPLE IN THIS GROUP.THAT HIS DISABILITIES.AND NOT WITH YOUR WEB CAMER PLEASE. I DO HAVE MY OWN GROUP ABOUT FRIENDS & DISABILITIES.I AM ON A WALKER AT TIMES.HERE HIS MY GROUP.

http://groups.msn.com/friendsdisabilities I HAVE BROWN HAIR AND GREEN EYES.MY AGE HIS 52.I AM THIN. CHERYL

I have been having a really hard time coping the past month or so. I would love to go somewhere in the South Pacific. I have had no vacation since 6-'92 when my daughter was shot through the face by her fiance'. She was never suppose to wake up but she surprised everyone. We have no family support up here in Alaska. I got my asso. of arts about a month before she was shot. Tell me about your selves--PLEASE.

MY NAME IS JOANN NOT "PDF" AS YOU READ. IT WAS A PET NAME NY SON GAVE ME WHEN HE WAS VERY YOUNG. HE PASSED AWAY FROM CANCER LAST YEAR IN THE FALL BUT NOW I CAN'T ERASE IT FROM MSN. JUST WANTED TO SAY HI AND WISH YOU ALL A VERY MERRY CHRISTMAS AND ALL THE BEST FOR THE COMMING YEAR. HOPE TO MEET SOME OF YOU THEN

I was born with dystonia ,in1996 i was hit head on by a drunk driver , after i came out of coma the docs told me i'd never walk again , they where wrong , i have osteo arthritis in every bone that was broken and except for arms that was pretty much all of the rest . I like to laugh and my sense of humor is just a tad wee warped , looking forward to meeting all of you .

I have right side hemiplegia and would like to make some new friends I live with my parents but looking at moving out

Nice looking site... gald to meet some new people

hello. i would love to share information on benefits for the disabled in other states. where i live you cannot get decent housing on a sliding scale. i've been on the waiting list since 1996; and if you saw the housing you must take if and when it comes up..........well......hmmmmm. only section 8 housing is offered to the disabled here. i am 49 but no one believes it? i have 3 grown sons. away. and widowed. i've had fatique and weakness since 1996; but work hard at living normally as possible! this year i had my lumbar re-built. my first traumatic surgery. bone degeneration. recovering well and researced thoroughly on how to avoid as much degeneration as possible. still...........living as normally as possible. i enjoy life and fun and have a goal to enjoy it even more. hoping to meet some sweet people across the us. mozarta.

TY FOR LETTING ME JOIN THIS GROUP!!

I am certainly looking forward to getting to know you folks here as I love meeting new people and since I don't really get out and about like I used to I have met a great group of friends online, please feel free to email me as I am great at answering

I have 2 writers' groups on the Internet: http://communities.msn.ca/DisabledWritersGroup "Disabled Voices" and http://www.eurobility.com/ "WriteAbility" Forum

I am interested in the attitudes of the disabled. I am writing about my experiences with Cerebral Palsy--poetry and short stories. My goals: 1.Create an anthology for publication. 2.Research Sociology/Phenomenology of Disability--perception of disability by the disabled--its expression in their writing. 3.Master's in Sociology/Social Work and PhD in Disability Studies. I need academic research and writers who identify as being disabled who are willing to share their experiences and their writing.

Hello everyone, I am so glad that I have found a place where people can understand how I am feeling. I am a single parent and I feel like I am starting a new chapter in my life. I am a braille reaer but I am so thankful for the computer. Looking forward to getting to know you. I also love a good cup of coffee. That makes my day.

I am a member of this fine community. I have Cerebral Palsy.

Please visit our site

Janus. Edward / My Story

It's about Sharing, Caring and Healing.

We are members of 'Top 100 MSN Communities'

EDWARD JANUS
http://[email protected]
http://groups.msn.com/janusedwardmystory

I JUST LIKE BEING ABLE TO GET THROUGH THE DAY WITHOUT ANY MAJOR MANIC EPISODES OR TO DEEP DEPRESSIONS.

Was a long haul truck driver,

Cathy

i hope to stay on an even keel and stay very happy.

Important Announcement The MSN Groups service will close in February 2009. You can move your group to Multiply, MSN’s partner for online groups. Learn More
Disabilities Oasis	[email protected]