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hitracelyn28
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Osteopathia Striata
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Georgia
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meeting others within the special needs community
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to return to work full time next year once my little girl enters preK
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[email protected]
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Hey, I'm Tracey married to a wonderful man by the name of Brian and we have a precious 3 year old daughter named Shelby Lynn. We reside in Waynesboro,GA. My days are filled with joyous moments spent with Shelby. My husband and little girl are my life. I am a devoted Christian, wife, mother,volunteer for the Center for New Beginnings- www.nbeginnings.org (our local non-profit Christian Center for the Special Needs) and also volunteer 1 morning a week at our Church's BiblePlaySchool Program. At the Center, I serve as the Parent Support Coordinator providing resourceful information to other parents as well as hosting monthly Parent Support Group meetings where we as parents can come together to get away from life's everyday struggles as being parents of special needs children for just a brief moment. Little More about Me........ My daughter and I both have a trach. We both have a rare syndrome, Osteopathia Striata with Cranial Scelrosis. This syndrome has several different names and variations. Abnormalities include: severe obstructive sleep apnea (which causes us to be tracheostomy dependent), very small nasal cavity/passages, hearing impairment, cleft palate, GI issues, very large bones (facial structure issues), dental issues, developmentally delayed,etc. Life span is normal there is no cure, and only a handful of people worldwide with it. I have had my trach for about 25 yrs and have done well if I have to say so myself. Shelby received her trach in 2006, she continues to thrive each day. I look forward to meeting others with similar backgrounds and hope to shed a little bit of hope and inspiration to others. Please visit Shelby's page for current family updates: www.carepages.com page id: babyshelby
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8/16/2008
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hitracelyn28
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Osteopathia Striata w/cranial scelrosis,tracheostomy & hearing aids
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Georgia
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meeting others within the special needs community
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hoping to return to work next year once my little girl goes to preK
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[email protected]
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Hey, I'm Tracey married to a wonderful man by the name of Brian and we have a precious 3 year old daughter named Shelby Lynn. We reside in Waynesboro,GA. My days are filled with joyous moments spent with Shelby. My husband and little girl are my life. I am a devoted Christian, wife, mother, & volunteer for the Center for New Beginnings- www.nbeginnings.org (our local non-profit Christian Center for the Special Needs) and also volunteer 1 morning a week at our Church's BiblePlaySchool Program. At the Center, I serve as the Parent Support Coordinator providing resourceful information to other parents as well as hosting monthly Parent Support Group meetings where we as parents can come together to get away from life's everyday struggles as being parents of special needs children for just a brief moment. Little More about Me........ My daughter and I both have a trach. We both have a rare syndrome, Osteopathia Striata with Cranial Scelrosis. This syndrome has several different names and variations. Abnormalities include: severe obstructive sleep apnea (which causes us to be tracheostomy dependent), very small nasal cavity/passages, hearing impairment, cleft palate, GI issues, very large bones (facial structure issues), dental issues, developmentally delayed,etc. Life span is normal there is no cure, and only a handful of people worldwide with it. I have had my trach for about 25 yrs and have done well if I have to say so myself. Shelby received her trach in 2006, she continues to thrive each day. I look forward to meeting others with similar backgrounds and hope to shed a little bit of hope and inspiration to others. I have posted our story in journal section to share a little hope,inspiration and know that God is Good All the Time. Please visit Shelby's page for current family updates: www.carepages.com page id: babyshelby
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8/16/2008
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Between_Lines_And_Verses
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L-5 Compression Fracture, hearing loss, T6-7 Compression fracture, Osteoarthritus, IBS, Spinal Canal Compromise
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N. California
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My passion is Writing
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To give of myself to others, because I should, to be a light in other's lives, to avoid Cancer if I can...to inspire others to reach for their goals,even if they are small goals, at first!
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[email protected]
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I was hit by a drunk driver head on going 80 in 1974 and am a disabled vet, age 55, a long time writer, just a quiet soul. I try to help everyone I can. Because I have had IBS for 6 months my diet changed drastically and I hope my Cancer risks have been lowered! All one can do is try to eat healthy and hope for the best! I am for the most part pain free, having to wear 2 back supports 24-7 , but I am happy and that is all that counts. I wish you all a great day. If you like ghost stories feel free to drop by my author website at www.whendarknesscomes.com If you have lower back pain, believe me, you do NOT have to accept that back pain. The 2 $25.00 back supports I wear help me to escape 90% or more back pain. I wear them 24-7 and hardly notice them. Mine came from wal-mart and you may only have to wear one, and perhaps your life will be better. I hope it will. If anyone would like to learn more about what you can do to help prevent Cancer, please e-mail me. I can e-mail you several files and you can be much more informed as to all the little things that will make a big difference in your health.
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8/15/2008
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cathy_cal_teacher1
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fibromyalgia, myofascial pain syndrome, spinal stenosis
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california
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getting to know new people, volunteering, giving in any ways i can
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doing follow up exercises from physical therapy
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[email protected]
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i am a teacher and am now permanently disabled due to the above disabilities. i am anxious to get to know group members
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6/14/2008
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TurquoiseWolf30
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Brain inhury when I was 17 1/2 left me unable to walk without a walker and also had two heart attacks/ strokes at that time as well
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Redford Michigan
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Reading, Writing, Art, My family, Music
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to one day be like I used too more confident in myself and more self reliant
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[email protected]
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When I was 17 I gave birth to my son and had numerous problems while giving birth I had a 10% chance of survival when I did survive they told me I would never walk again so I pushed myself hard and did but I had a relaspe about 4 years ago and now walk with a walker again I also have brain damage from the same situation
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4/25/2008
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OCBeachBum_0
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Otosclerosis, Meniere's Disease, Acoustic Neuroma
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Ocean City, Maryland
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Music, Movies, Art, Literature
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Right now, Survival
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[email protected]
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11/11/2007
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incheck728
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stroke survor
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western mass.
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football,music,cooking,chatting, comedy,much more.....
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walk with out my brace on.
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ncheck728 @hotmail.com
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hello, Iam Suzane Iam a stroke survor, mother of one child whom was 3 when i had my CVA.I tought him how to ride his bicycle from a wheel chair, played baseball , i did the mom role on wheels. I was lucky to survive it all but still found it my duty to due my part in raising a child.never give up hope.!suzane~
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11/10/2007
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incheck728
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TBI sevicor(hemi-peligic)L.side
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western mass
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mucic,cooking,football,
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going to school, living life,
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[email protected]
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11/5/2007
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Tenderheartedfemale1
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Apert syndrome, legally blind, multiple low back problems
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North Carolina, USA
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meeting people, reading, writing, learning about different countries and their cultures, and collecting postcards
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to go to college
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[email protected]
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I'm a very caring person and see with my heart. I'm looking for friendship.
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8/19/2007
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Lakeozarkman1
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rheumatoid arthritis
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missouri
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working on computers
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[email protected]
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Hello to everyone, My name is keith, i was in the restaurant biz as management for over 25 yrs, now im disabled since 2000. I try to help others out that is disabled or whatever they may need help with. I make friends online since i dont get out much at all. hope to be of assistance to you all. thank you Need to know more about me just ask.
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7/15/2007
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Purplepassion1963
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RA/OA/FIBRO.DJD/CHRONIC PAIN SYMDROME/FATIGUE
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Maine
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Computers, Meeting new People, home decor
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Loose weight, Become more aware of my health issues
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[email protected]
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TY FOR LETTING ME JOIN THIS GROUP!!
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3/31/2007
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PapaDocrmurr5073
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3/28/2007
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PapaDocrmurr5073
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Fused Hips
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Wash. State
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Trivia, Languages, Humor, My family, Travel, Meeting new people.
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To learn how to properly cook a "Baked Potato" ! lol
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[email protected] [email protected]
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Hi Guys ! Nice to behere ! I hope to meet many of you nice people ! Just "retired" and have a lot of time on my hands. Just discovered "Disabilities Oasis", and I believe it to be the best Dis. group I have found! Been a member of a couple of others ...Quit, too much intolerance and clique-ishness (is that a word ? lol ) Wish we still had a chatroom ..oh well ! Anyway, I would really enjoy sharing ideas, feelings, observations, information, and a whole lot of laughs with all of you ! Thank You, for having me here ! Richard (PDoc, or as my son calls me, "PDawg" )
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3/28/2007
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PapaDocrmurr5073
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Fused Hips
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Wash. State
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Trivia, Languages, Humor, My family, Travel, Meeting new people.
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To learn how to properly cook a "Baked Potato" ! lol
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[email protected] [email protected]
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Hi Guys ! Nice to behere ! I hope to meet many of you nice people ! Just "retired" and have a lot of time on my hands. Just discovered "Disabilities Oasis", and I believe it to be the best Dis. group I have found! Been a member of a couple of others ...Quit, too much intolerance and clique-ishness (is that a word ? lol ) Wish we still had a chatroom ..oh well ! Anyway, I would really enjoy sharing ideas, feelings, observations, information, and a whole lot of laughs with all of you ! Thank You, for having me here ! Richard (PDoc, or as my son calls me, "PDawg" )
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3/28/2007
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PapaDocrmurr5073
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Fused Hips
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Wash. State
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Trivia, Languages, Humor, My family, Travel, Meeting new people.
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To learn how to properly cook a "Baked Potato" ! lol
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[email protected] [email protected]
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Hi Guys ! Nice to behere ! I hope to meet many of you nice people ! Just "retired" and have a lot of time on my hands. Just discovered "Disabilities Oasis", and I believe it to be the best Dis. group I have found! Been a member of a couple of others ...Quit, too much intolerance and clique-ishness (is that a word ? lol ) Wish we still had a chatroom ..oh well ! Anyway, I would really enjoy sharing ideas, feelings, observations, information, and a whole lot of laughs with all of you ! Thank You, for having me here ! Richard (PDoc, or as my son calls me, "PDawg" )
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3/28/2007
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PapaDocrmurr5073
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Fused Hips
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Wash. State
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Trivia, Languages, Humor, My family, Travel, Meeting new people.
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To learn how to properly cook a "Baked Potato" ! lol
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[email protected] [email protected]
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Hi Guys ! Nice to behere ! I hope to meet many of you nice people ! Just "retired" and have a lot of time on my hands. Just discovered "Disabilities Oasis", and I believe it to be the best Dis. group I have found! Been a member of a couple of others ...Quit, too much intolerance and clique-ishness (is that a word ? lol ) Wish we still had a chatroom ..oh well ! Anyway, I would really enjoy sharing ideas, feelings, observations, information, and a whole lot of laughs with all of you ! Thank You, for having me here ! Richard (PDoc, or as my son calls me, "PDawg" )
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3/28/2007
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PapaDocrmurr5073
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Fused Hips (Arthritis)
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Wash. State
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My wife and Stepsons, Languages, Trivia, talking to people "on-line"
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We want to have our own home and land, someday !
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[email protected] [email protected] [email protected]
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Hi There ! Nice to meet you ! Been disabled since '89, shuffle around like an ole' cowboy ..Ha Ha !! I'm 50 ( I know, an "old fart" ! lol), and I've just celebrated my 1st anniversary with my lovely wife, Virginia (Feb. 14th )! Was married before, but did't work out ...I was young and foolish, lol Am very happy, Virginia is my best friend !! I speak English (obviously ) and quite a bit of Spanish .. Se habla Espanol ? I just retired from working with children for the local YMCA, and the school district for 11 years after becoming disabled (part-time career, of sorts ! Previously worked in the Grocery business for 13 years. Now, I devote my time to my lovely spouse, and my 2 handsome stepsons (Thank God, they don't look like me ! lol )! Have you heard that Country song, "Mr. Mom", yup ..thats me !! Ah .. the consumate "house-husband" ...kinda like it ... its fun !! ... Make dinner for Mama and the boys, keep up the laundry and dishes (Arrg !), and have lots of time ... watching my fav shows ("Judging Amy", "Law & Order", and "The Outer Limits") visiting "on-line, and hangin' with my buddy, "Tiger" ( "The Cat" / "El Gato", lol) !! I almost named my cat "Flaco" (skinny), but I thought it might hurt his feelings lol Its different being "totally retired" ...sometimes gets boring ..thats where you nice folks come in ... Anytime ANY OF YOU, want to visit, just drop me an e-mail, or I can read your messages in the group site. ok ? Sincerely, Ole' "PapaDoc" (thats what my wife calls me ..Ha Ha !) AKA .. Richard HAVE A WONDERFUL DAY !!!
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3/27/2007
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tiffle3
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Hydrocephalus (brain injury)
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Alberta Canada
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reading,music, art, crafts
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to write and be nationally recognised
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[email protected]
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hello all After a long decisin I have decided I need to get out there and meet other people. I need to know that I have a right to be accepted as I am and liked for that person. I am hoping to networking with others in simular situations. So, let's here from you! C'ya soon! tiffle3
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3/8/2007
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pokey92277_1986_29palms
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Chronic pain,incontinence
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California
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Books,Movies,Road Trips
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to make each day better for myself
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[email protected]
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I cant wait to get to know everyone.
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3/3/2007
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salvavida
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Hearing impaired
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Ontario Canada
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Crochet, jewellery making, painting
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Finish my DSW!!
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I am 44 years old and an RPN in Ontario. I volunteer on medical brigades to Honduras and with brain injured clients. I have a 15 year old daughter and have been married 5 months to my second husband!!
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11/28/2006
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Michelle6183
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Blindness
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Oregon
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Family, Friends, Computer
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Going to the Commission the Blind to get training
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[email protected]
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11/4/2006
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Cardmaker_0203
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Cerebral Palsy
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Perth Australia
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cardmaking and surfing the net
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live independantly
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[email protected]
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I have right side hemiplegia and would like to make some new friends I live with my parents but looking at moving out
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10/15/2006
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☻Diabetes_Cheryl�?/nobr>
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Diabetes and have seizures and insulin shock
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ARKANSAS
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writ pen pal,crochet,puzzles,cumputer classes,music,tv
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I like to get out more with other people.That why I go to the Oasis in ARKANSAS.
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[email protected]
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I LIKE TO GET TO KNOW PEOPLE IN THIS GROUP.THAT HIS DISABILITIES.AND NOT WITH YOUR WEB CAMER PLEASE. I DO HAVE MY OWN GROUP ABOUT FRIENDS & DISABILITIES.I AM ON A WALKER AT TIMES.HERE HIS MY GROUP.
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5/6/2006
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_Nette_22
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Transverse Myelitis, Dysautonomia, Bipolar, Depression, Diabetes, Asthma, and a few more
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Richmond, IN
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Reading, Chtting, Camping
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To survive each day
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[email protected]
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3/18/2006
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Lovrly1
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I have heart and resperatory failer diebeties and high blood pressure under 24hr. care for life
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oklahoma
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i like crafts, pets, children,moves and online shopping ect.
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to live longer and happier thand expected to
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[email protected]
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im 37 and live with my parents caring for my needs.24hrs. a day im looking to have outside contact with people and make some friends .so hi nice to meet you. hope to hear from you soon
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1/27/2006
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jhighfield21943
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Multiple Sclerosis
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Canada
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My computer next to my 5 grand-children
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Keep on moving as long as possible
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jhighfield2hotmail.com
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MY NAME IS JOANN NOT "PDF" AS YOU READ. IT WAS A PET NAME NY SON GAVE ME WHEN HE WAS VERY YOUNG. HE PASSED AWAY FROM CANCER LAST YEAR IN THE FALL BUT NOW I CAN'T ERASE IT FROM MSN. JUST WANTED TO SAY HI AND WISH YOU ALL A VERY MERRY CHRISTMAS AND ALL THE BEST FOR THE COMMING YEAR. HOPE TO MEET SOME OF YOU THEN BEST WISHES JOANN
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12/21/2005
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_WindsofChange�?/nobr>
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My husband is physically challenged and I have Fibromyalgia and Chronic Fatigue Syndrome
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Virginia
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writing, art, spiritual subjects and many more things...
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To learn and support my loved one
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[email protected]
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This is my spiritual group. http://groups.msn.com/ARoomOfLight
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1/5/2005
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Kalaya76
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deafness, slightly brain damaged
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British Columbia, Canada
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writings
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go to college to start a career
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[email protected]
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I'm not the one to talk about me being brain damaged. It happened when I was born so it's extra harder on me to even think. I'm just saying thatbecause of experiences I have gone through, I would like to help. In other words, I'm there for you no matter what.
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12/14/2004
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3lisalee333
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mitochrail ....malas for short
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chicago
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biking on motorcycles and just anything i can do..
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to get people to know about this disease and win the lottery to help lol
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[email protected]
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this disease sucks they said about 4 yrs. ago i will not live 6 months well everything is dead inside and does not work but at least one does lol, i am a cheap date, i am on only liqiuds once in awhile a real meal but i am still going, they do not know how to treat it and if i got it as a kid i would of been gone by know but since it happen at 33 yrs. old they do not know, i went to the mayo clinic in minn. they were great and some nice looking doc's but everyone was so great and treat me like someone, i felt like a queen all you have to pay for is you hotel bil,lot's of money if your there long but the weather stays at 75% and it was just great, althougth all the girls were alittle bigger then me, i am a twig, i wish i had there meat, but space it out in the right places, lol dream on, i stuck with this one, ....i have 3 kids of my own and raised 2 from a marriage so 5 all togather, they still come see me, with out there dad hear , but anyways, i am just happy to be hear every day and have no room to feel sorry for myself peed off but well what are you gonna do, i try to live life to the fulless even if tends me in the hospital, for over doing it, but that is a vacation my rest one, then the other i go...go..go.. you will findind me taking walks at 2am just because i cannot sleep why sit there,or i will rake leaves or clean up out side whatever, go dancing when i can what ever, well i do not want to write a book ......
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11/11/2004
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Starky
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T-4 paraplegic for 48 yrs.
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Cape Cod Mass.
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Old time radio programs, granddaughters, Just enjoying life.
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Enjoy each day. Make each one fun, fun, fun!
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[email protected]
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No comments right now. I'm new here, so I want to get to know what's going on.
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11/7/2004
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babypink
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blindness, erythemanodosum depression, and asthma
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De
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My interests are my two birds they are cockatiels definetly the computer, music, poetry, uplifting stories, baseball, horses, caring for others.
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My personal goals are to finish college,I just started in August to learn to be more independant, to face everyday with peace in my heart, and to love God with all my heart.
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My e-mail is [email protected]
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Hello everyone, I am so glad that I have found a place where people can understand how I am feeling. I am a single parent and I feel like I am starting a new chapter in my life. I am a braille reaer but I am so thankful for the computer. Looking forward to getting to know you. I also love a good cup of coffee. That makes my day.
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9/23/2004
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momoflacrosse
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scoliosis - thoracic 60 degrees lumbar 40- blockage of right coronary artery and atrial fibrilation
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Oshawa, Ontario, Canada
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lacrosse, crafts, reading,
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lose weight, quit smoking, exercise more
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[email protected]
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I am certainly looking forward to getting to know you folks here as I love meeting new people and since I don't really get out and about like I used to I have met a great group of friends online, please feel free to email me as I am great at answering
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8/21/2004
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momoflacrosse
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scoliosis - thoracic 60 degrees lumbar 40- blockage of right coronary artery and atrial fibrilation
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Oshawa, Ontario, Canada
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lacrosse, crafts, reading,
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lose weight, quit smoking, exercise more
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[email protected]
|
I am certainly looking forward to getting to know you folks here as I love meeting new people and since I don't really get out and about like I used to I have met a great group of friends online, please feel free to email me as I am great at answering
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8/21/2004
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craigswoman6171
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dyslexia add F.A.S
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delaware
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pc going to the pool beach having fun
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getting my house married next year
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[email protected]
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hi everyone just want to meet people and make good friends
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6/17/2004
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KENINJAX
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amputee(left foot) breastbone seperation from open heart surgery for birth defect , diabetic, in wheelchair
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Jacksonville,Fl.
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very mechanically inclined, gardening,home remodeling,auto repair, theme parks,country craft festivals,sight seeing
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to remain as independant and mobile as possible, meet a LOCAL female , tired of the long distance romance /email /chat
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[email protected]
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Would like to meet a lady within a normal driving distance,for posible long term relationship.
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6/14/2004
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Chas
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Schizoaffective Disorder
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Wichita, Kansas
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Breeding tropical fish, Music Production
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[email protected]
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Write me, I will respond
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5/27/2004
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T. J.
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LD & anxiety disorder
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Hermiston, OR
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Braille & sign language
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To be able to write letters to my blind friend
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[email protected]
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I know a blind person from school that I would like to become friends with. I also would like to learn to format letters in Braille. T. J.
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5/12/2004
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Bubbasee
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Psoriatic Arthritis
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Warren, Pennsylvania, USA
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Aviation, Gardening, Aviation, did I mention Aviation.
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To pass my Controller level 1 test.
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[email protected]
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Yes I do Love aviation. I experience my passion through the virtual world by flying and controlling with other avaiation enhuasists online! It's an amazingly realistic world and a fantastic experience!
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5/7/2004
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UniqueQueenie
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daughter with CP, Epilepsy
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Dodgeville, WI USA
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Reading and spending time with family and friends
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Finishing my Bachelors Degree in Business Managment
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3/24/2004
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RollinJen
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T-12 para
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Illinois
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My kids, movies,horses, spectator racing
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Be kind to others and keep on living life
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[email protected]
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Be careful of what you say and do to others because what comes around go's around and it just may come back and smack you in the face. HARD!!!!
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3/24/2004
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