MSN Home  |  My MSN  |  Hotmail
Sign in to Windows Live ID Web Search:   
go to MSNGroups 
Free Forum Hosting
 

Important Announcement Important Announcement
The MSN Groups service will close in February 2009. You can move your group to Multiply, MSN’s partner for online groups. Learn More
Penny,s PlaceContains "mature" content, but not necessarily adult.[email protected] 
  
What's New
  
  ♥♥Welcome♥♥  
  ♥♣♥CHAT♥♣♥  
  General  
  ~*~Off Topic~*~  
  ☺JUKE BOX☺  
  Pictures  
  ♥♣Our Giraffe♣♥  
  ♣Snaggables♣  
  Tips/Tricks♣&PSP  
  ▓Our Stories▓  
  ♪♫Birthdays♪♫  
  ╬ ~The Chapel~╬  
  ♥♣SITE MAP♣♥  
  ~Room Meets~  
  ~*RULES*~  
  
  
  Tools  
 
General : Mad Poshy is confessing!
Choose another message board
 
     
Reply
 Message 1 of 36 in Discussion 
From: MSN NicknamePenny_farthing3  (Original Message)Sent: 9/17/2008 11:53 AM
Ok..I may have mentioned this to a couple of you..but now I am going to share this with you all.
(Includes photos..which I am now going to post below..do not look if you are squeamish).
basically for 30 years I have sufferred a skin problem.
I have been told it is all my own fault..it is the itch-scratch-itch cycle.
I have argued this till i am blue in the face...becaue i am not a child who picks or a baby needing scratch mitts.I have always inssited I am allergic to something.No tests wre ever done but I have lived on steroids all those 30 years and I swear the continued use has affected my skin more.
Now yes I have my limbs and facilties..yes I can walk talk see and hear.
However noone will know the excrutiating pain I have sufferred..and the physcological effects this has.
I hate going to stay with folks because when I scratch..i cause bleeding and hotels..guesthouses ..are a problem..I need to take bedding with me.If I stay at a friends..I have to take zip zocs..body wraps and jogging suit to wear to bed..in fact I confess..i dont sleep..I stay up all night making sure I dont scratch!!
Life has become unbearable..I do not sleep in the same bed as my husband because I scratch till the bedding is covred in blood..I disturb Hubby and he has often ended up with my blood over him.
Why I am telling you all>>Isnt this a personal thing?/
yes.It is.
I am telling you because next wednesday I am going to Euston London to take part in a tv show called Embarrassing illnesses.
If I accept their offer to be televised on their 3rd series (starting new year)..
The second series I refused to go on because it would mean me going to TURKEY!!To take part in an experimental spa bath treatment with 7 others.(This programme is going out Oct 2nd on Mavericktc..)
Well in order for me to be prepared to go on tv and show my body..I need to start now..sharing the problem with others..so here I am sharing with you all first..to see if I can actually do this.
Th diagnosis has been
ezcema..psoriosis..then lichen disease..then chicken skin disease..then adfter 10 years told it is self inflicted.
It was not until I contacted Jas on embarrassing illnesses tv show that my own gp refferred me back to dermatology at Haslar military hospital for allergy tests.
(These were done last week..and I tell ya..they took phial after phial of blood..almost a half a pint..I never drank so much tea to build me back up again after!
On Oct 21st I am having yet more biopsies done because some time ago I had Bowens disease ( a pre-cancer) of the skin caused by a dark mole and then last Novmber I had a breast lump scare caused by one of these skin "spots/lumps infecting me in my Boob!!)I had a big piece removed and thought all was ok..until last week when the same lump appeared.
When a new doctor sees me..
(such as..I have scratched till I bled and ran into the nearest hospital casualty for zip zocs or dressings..they always say omg!1Looks like scabies!!Again when I went to the new doctors in Cotswolds (and they didnt have my notes..it was OMG!!Scabies!)..of course it is NOT scabies..I would be eaten alive by now..and have been treated WRONGLY with too much lyclear scabies treatment that it has poisoned my skin.
I can not work with food anymore ..I have just today had to phone and cancel a job position with a brain injured man..because I can not take the risk of going in a hydropool with him each day..due to the chemicals and unsightly skin problem.
All these things affect my life..so I am damned determined to prove that I am allergic to something (be it an additive..a colouring..or food.)
I am not prepared to be told I am some neurotic idiot who wants to scratch herself to death anymore.
The tens machine should be used for someone with severe pain..and not wasted on my skin pain when there is no need for me to be like this.
So there ya go..I confess!I am going to parade myself on national TV because I cant go into old age with this pain and sevre sores and rash.
Below are pictures of me..and that is the real me hidden under my clothes..and my face (although I can cover it with stage makeup..) it is now getting too severe to cover up.)
You may b wondering why am I going on tv??What about BB my daughter with her Lymphoedema?
Well she has also got an inteview with Embarrassing Illnesses and we await their decision.
 


First  Previous  22-36 of 36  Next  Last 
Reply
 Message 22 of 36 in Discussion 
From: MSN Nickname¤Penny¤2Sent: 9/18/2008 6:31 PM
I drank Aloe vera from the bottle Katha..
it was well publised once for intestinal..digestive purposes and I drove to London Idea Home to gt it back in the 90,s..cos I has H-Pylori at the time and thought wll maybe that will clear ma skin.
 
Can ya see how frustrated I get>>??
All of you are so kind and patient..u all offer ideas..but i think over 30 years I have tried everything.
I just hope now i have demanded allergy tsts they show something..but thinking on last weeks blood tests ..the 16 phials taken..says for
dust mites..cats/dogs..zinc..wheat..dairy..
things I have eliminated at one stage or another.
 
what i need is a magic wand now.
But i will keep checking back here..cos one day someone may hit on sommat I aint tried..
Please ..please..cos I have the pins and needles sensation in all ma nerve endings today.
have spoken to jas at tv programme today and she has asked me to rethink going to the tv show in Turkey..its almost tempting..but i need a job and cant leave uk for 6 weeks.

Reply
 Message 23 of 36 in Discussion 
From: MSN Nickname¤Penny¤2Sent: 9/18/2008 6:38 PM
P.s can ya all give me ideas..thoughts..things u tried for ANY skin problem??
cos I am opening a msn group skin problem/PN support group..with help from Jas at tv show.
We will just plonk folks ideas..experiments..things they have tried..their stories..
all about ANY skin problem..because at end of day..Prurigo Nodularis is what happens after ANY skin disorder has been attacked by scratching over a period of time..
Thank gawd those who suffer skin orders can stop the urge to scratch..for me because noone has given the allergy cause..I can not prevent the itch-scratch-pain..skin damage.
 
 
If anyone has skin pigmentation or scarring..please lease tell me what you use..
I have used skin stage cosmetic makeup on my face..
and i look quite silly being the only one wearing makeup when so many women can walk around wiv out any makeup at all.

Reply
 Message 24 of 36 in Discussion 
From: MSN NicknameLabdogslover1Sent: 9/18/2008 7:20 PM
You are not allergic to men, are you Poshy, or men with beards?

Reply
 Message 25 of 36 in Discussion 
From: MSN Nickname©Rowan©Sent: 9/18/2008 7:53 PM
PENNY,  When I stay out in Sun for more than 10 mins my cancer arm swells up.
they call it Cellulitis. at the moment mu arm is as small as it ever is. but I do have red spits not many.now we know you do not have cancer but BB has similiar symptoms but much worse with Lymphoma.
Could ther be any connection?   Silly sounding I have to cover up arm in sun but take Vitamin D for lask of sun;
I should have known you would have all details on record I am glad you have. it looks as if whatever you do have gets worse in hospital surroundings.  take care Lady you have such courage you inspire the rest of us.   remember we are here and if you want private most are on your IM.  we have different health systems here they might have popped you in isolation till they worked it out.  I used to think that UK had best ways 41 years later I am not so sure.   the lack of Drs and how busy they are causes havoc.
But sorry they should keep u[ with all new research.
Penny you and BB take care you will get some answers.
Bless you both.
Helen.

Reply
 Message 26 of 36 in Discussion 
From: MSN Nicknamekâ†hâ®í‡âSent: 9/18/2008 7:57 PM
Penny go buy an Aloe Vera Plant Cut off a bit of leaf split open and rub the gel on an area Its got to be worth a try
 
 
 
 

Reply
 Message 27 of 36 in Discussion 
From: MSN NicknameWildcatFoxy196441Sent: 9/18/2008 8:27 PM
http://www.youtube.com/watch?v=Wohrg4Y4OqM                 Not trying to put you off penny, this is probably what they have in mind. I have read a few articles on this, & it seems to work, what have you got to lose?  You get a hol too, & there`d be others with skin complaints,& probably, if not more, embarrassed than you. Hope you find something to help penny,    Otter xx

Reply
 Message 28 of 36 in Discussion 
From: MSN Nickname©Rowan©Sent: 9/18/2008 11:11 PM
Otter when Carole got home I had her look at the postings from Penny,
we also looked it up on the net.  Some pictures were scary.  but it appears the name cobvers a few different skin diseases.One thing I did see is that stress is connected to al of them.
Penny have you had one hour that was not stressful lately????? I think after you go to this interview and do what they think will help you.  could you take say at least two weeks and do nothing to do with room. there are folk you trust to take care of it.you can sit in your garden weed it if you like decide what you want in it next year. just nothing that has deadline no stress.  whhatever they tell you at interview the rest will help your mind.  you have worry on it and the room and BB and yourself.  Give it a break.
Bless,
Selkie

Reply
 Message 29 of 36 in Discussion 
From: MSN NicknameSilkstoneLadySent: 9/19/2008 8:59 PM
hi Pennypops.. i remeber when I first came to your house..we tried everyhtimg and then some.
Now I agree with Roan re stress and some of the links I sent you reently also said stress.. it damages and reduces your immune syatem remember laying you open to things.
Right now I have come across these light bulbd. They are low energy and available in many strengths.
I get SAD as do two of my sons and I have hit analltime low in energy so I thought..aha!
Its time I sorted a lightbox of my own, having bought the two of my sons one each.The third doesnt get it.
Ok.. i looked and found this site.. not only has it been featured on Y TV for SAD but.. it has other uses.. hay fever, pollen, many allergies.
Woth a try?
I am goping to send for a cou0ple and plug one into a table lamp that I can move around and the other in the central light.
Tey seem to cost £9.99 each so I will let you know if I think they help. They will hjave an accumaltive effect as the large ;light boxes do. Now is the time to start dosing yourselves people.
Look up SAD here...http://www.sada.org.uk/whatis.htm. Tells you all about it.
Then the link for ther light bulbs is....

http://www.eudemonuk.co.uk/index.php?target=products&product_id=1#description

hope you find this of interest.
Watch this space

love to all
Silks xxx

Reply
 Message 30 of 36 in Discussion 
From: MSN Nickname©Rowan©Sent: 9/20/2008 2:48 PM
Silks you are so clever I never thought of SAD thousands suffer from it. I think I do too.  the Smpyoms desribe Penny troubles.   Penny it may not be the cure but it is worth a try.
 
Selkie.

Reply
 Message 31 of 36 in Discussion 
From: MSN NicknameLEDA90Sent: 9/20/2008 6:42 PM
Hi Penny
 
Now for my twopennath!!
 
I really do hope that you manage to find the answers that you are looking for regarding your skin, and in turn that the remedy will ease your pain.
 
However,  beauty is only skin deep...its who you are inside that counts, and we all know who you are, kind - considerate- loyal - friend!!!!
 
Love  Leda  xx

Reply
 Message 32 of 36 in Discussion 
From: MSN NicknameLabdogslover1Sent: 9/20/2008 11:25 PM
Well said Leda!

Reply
 Message 33 of 36 in Discussion 
From: MSN NicknameSilkstoneLadySent: 9/25/2008 1:10 PM
Aww Leda and Labs.. we all know that of course.. but all our love and support..doesnt stop the itches!
I am still on the case Penny and hunting for anything I think is remotely connected with both you and lickle BB!
I will fwd every link I find!

Thinking of you always
Silks xxx

Reply
 Message 34 of 36 in Discussion 
From: MSN NicknameAngelstar-in-flightSent: 9/26/2008 2:10 AM
Leda is right Penny, you are a wonderful person, kind, considerate, always putting others feelings first. We love you for who you are, not what you look like.
This, of course, does not help your problem. The itching that drives you mad, the doctors that seem to fob you off. I only wish we could come up with a solution for you. Although Silks seems to be on the case with vengence!!!
And Rowan had a point .... when was the last time you had a stress-free day ???
Love you lots and doing my bit by sending healing thoughts and prayers.
Love Angelstar xxx
 

Reply
 Message 35 of 36 in Discussion 
From: MSN NicknameLabdogslover1Sent: 9/30/2008 5:25 PM
Have you tried wearing clothing such as cotton rather than man made fibres?

Reply
 Message 36 of 36 in Discussion 
From: MSN Nickname¤Penny¤2Sent: 9/30/2008 6:09 PM
Now thats sommat I have not tried Lab..
hm good thinking..
I,ll try that..though I must admit..if indoors in the daytime I do war cotton trousers even pj bottoms!!
I,ll start wearing all cotton instead of polyester..nylon content garments.
Thankyou lab.

First  Previous  22-36 of 36  Next  Last 
Return to General