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Hey mambajama
Yes I did ditch the meds and the doctors.
I would not recommend it for those of you still in the first stages.
My one hand and arm is badly atrophied but it seems to have stopped at the top of my other shoulder.
I have done just about all there is to do short of the stim and pump! Neither is a good enough option for the risk in my book.
I got tired of being prodded and always in the doc's office or the hospital.
Some of the meds had my sitting heart rate @ over 210 beats a min.
I had jaundice as a child and liver damage is a concern.
I will say this to everyone. It is your body!
A doctor hurts you tell them.You dont like a certain procedure
Tell them you wont be doing that again.
I had the best specialist in Tampa but he didnt write any scrpis so I was always fighting to get pain relief.
Baclofen
Elaval
Clonidine
So on and so forth..But I dont think I ever get any real pain relivers!
I all most died during a block that some student did and he never juiced me up for cause we were all heroin junkies!
The crap I have put up with no human should ever have to.
I received a whole 60 grand from W/C for a life time of medical,yup that was real fair!
I had a doc change my meds and had a massive seizure!
That's a lot of fun,not to mention the state I moved to forces me to see a neurologists before they allow me to drive each year.
That's the only doc I have seen once a year!
My wife after seeing me suffer so bad said it's time to take charge of you own health.
So we moved away from the lighting capitol(dont know if it bother others but each strike killed me) I took my self slowly off all the meds.
Having had this so long I have trained my mind to not listen to the pain.
Most days I do ok and some are a pain in the butt!
Over all my quality of life is much better as I am not walking around in a coma for getting what I walked into the bathroom for.
I should of moved to cali.The pain relief would of been easier!
I dont recommend this for any one .But I am here for you all cause I do know what it is like being told it's all in your head.
Yes I have had the shrinks too............Boy that was a lot of fun!
So any question I can help with I am here!
I will help as best I can.
Just know there is life beyond all this and you can make it!
I wont lie and tell you it is always roses but you all can survive I know it.
Back when i first got this there was little help.
All of you keep your heads up and remember my motto.
I out of bed and dressed......What the heck else you want from me!
Anybody ever want to chat...I'm doobiedoright on yahoo ms |
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