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Hi mom in need..
My mother is probably asking all the same questions you are asking. I don't have a whole lot of answers to offer but recently I sent out an email to my family and friends to offer some insight of MY personal experience with this. so this could be how your daughter is feeling but perhaps not, we all experience things differently and I dont want to speak on her behalf
Hope this helps.
This was taken from the letter I sent......................
Some days are better than others so if I seem like I am doing more let me do it, cause later can be different. I find that I would sometimes rather stay at home alone, so if I flake out on you, or suddenly leave, please, please don't take it personally. Its because I hurt or sometimes even the fear of the hurt gets the best of me. Another thing is sleep. Now understanding the term chronic pain from experience I understand lack of sleep. Most nights I can only sleep 2-3 hours. So if I look tired, please don't mention it, I already know. I also get kinda down, it is hard to accept the life changes I have to face. I can not go back to the ER, which I miss and loved. And I think I was kinda outgoing. I don't do that much either. So if I seem kinda down, no worries I am just trying to get things sorted out. What I can and can not do.
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