Hello All:  My daughter is 22 years old and has RSD.  I am finding it so hard to cope with all her ups and downs.  Some days I feel like she is not even trying and than other days I realize that she suffers so much.  I feel guilty on the days that I feel like she is not trying.  She was involved in an accident when she was 15 years old, had her L4-L5 fused when she was 17 and life seemed really good.  Most days she was between 75 to 100% okay.  Than she slipped on water at work and hurt her hip and arm.  Since that time she has had few days that she has felt relief from her pain.  She has not worked since april of 2007 and feels "worthless" but she also is not willing to let us help her (clean house, do laundry).  She has a boyfriend but he does not help her at all.  We have told him that he needs to step up to the platter, but we (my husband and I) cannot see where he does anything around the house to help get things done.

 

Because of her injury we have had to help pay the bills.  We have agreed to always pay for medications and the co-pays for medical.  We have also helped pay for her utilities, groceries and house insurance, vehicle insurance.

 

She has applied for SSD however has been denied twice and is now going to have to go before an ALJ.  Food stamps and Energy Assistance has denied her benefits because her boyfriend makes to much money.  She is constantly harrassed by creditors because she owes a lot of medical bills.

 

I don't know if there are other parents in my shoes, if you are out there do you have any suggestions for us.  We have told our daughter that we are now financially drained and cannot "borrow" her anymore money.  Our savings is depleted.   We have suggested to her that maybe she should move back home, but she is really adamant about not wanting to do that.  I guess that is our biggest frustration.