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| | From:  Serenity_® (Original Message) | Sent: 10/9/2003 8:46 AM |
|  Hi everyone my name is Cindy aka Serenity. I am a 43 yr old happily married lady with three children, and I live in Ontario, Canada. I was diagnosed with RSD just this last April, and I am having a bit of a hard time with it. I was so happy to find this place, it'll be great to meet people who are in the same boat as I am. So many people have never heard of RSD, and it's a little frustrating trying to explain it to them. I do know though that I would never wish this on anyone. I look forward to getting to know all of you. (((((hugs))))) | |
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Hello serenity Welcome to our little family.I am so sorry that you and your family have to deal with this monster. It is nice to have another another canadian around.I know what you mean in canada no one has rsd is even the people who treat us some times have no clue.So do you have a good pain center behind you in ontario?A good pain center is always a big help.I am very happy to hear that you have a family there to support you.They make everything just a bit easier.So where do you live in ontario?If you ever just need to talk you can always email me at [email protected] am very quick at answering them. Talk to you soon your friend Mirage |
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Hi Serenity and welcome to the family. My name is Janine and I am the
founder of this little family. I'm sorry I haven't welcomed you sooner but I
am in the process of moving and I have been away from a computer for a
while. It will continue to be sporadic for some time yet as far as my being
online but I will get back with every one as I can.
I and every one else here understand what you mean when it comes to others
lack of understanding of this disease and the lack of information out there
on this disease. I did countless hours of research trying to understand what
was happening to my body and why only to find myself more confused than I
was when I started out. I agree with Aimmee that the best thing is a good
pain clinic to help you through all of this. The best thing that happened to
me was my pain doctor and the neurological medications that he put me on.
Since he got me on the nuero meds I am once again walking and without my
cane. I am not pain free but I am pain tolerant. The number of pain meds I
am taking have decreased and the level of opiates are way down. I am no
longer on the heavy hitting stuff (methadone) and take very little of the
low dose stuff (percocet). It has to be bad for the to even have to take a
muscle relaxer. My hat goes off to my pain doc.
If you ever need to talk just feel free to email me at any time. I will get
back with you as quick as I can. It may take me a bit right now but as soon
as I get into a permanent place I answer really quickly.
Janine
[email protected]
PS Feel free to use the links I have provided on the website for
referencing information on RSD. I tired to put only the best stuff there. If
you have any sites you would like to suggest feel free to email them to me
and I will look them over for use on the site.
"Winners Never Quit and Quitters Never Win"
>From: "RSD Helpline Support Group" <[email protected]>
>Reply-To: "RSD Helpline Support Group"
><[email protected]>
>To: "RSD Helpline Support Group" <[email protected]>
>Subject: Hi!
>Date: Thu, 9 Oct 2003 00:46:40 -0700
>
>-----------------------------------------------------------
>
>New Message on RSD Helpline Support Group
>
>-----------------------------------------------------------
>From: Serenity_®
>Message 1 in Discussion
>
>
>
> Hi everyone my name is Cindy aka Serenity. I am a 43 yr old happily
>married lady with three children, and I live in Ontario, Canada. I was
>diagnosed with RSD just this last April, and I am having a bit of a hard
>time with it. I was so happy to find this place, it'll be great to meet
>people who are in the same boat as I am. So many people have never heard of
>RSD, and it's a little frustrating trying to explain it to them. I do know
>though that I would never wish this on anyone. I look forward to getting to
>know all of you. (((((hugs)))))
>
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HI {{{{CINDY}}}} nice meeting you! welcome!! WELLCOME too all of our new members!! WE ARE A FAMILY here,, feel welcome too post anytime,, let us know when you are free too chat!! RIGHT now I am tied up on WED an FRI,,, in drs office,, all day long,, for now going thru testing.RSD seems too be spreading thru my body!! I have it in my right foot, an leg an in my arms an hands also, my foot an leg is the worst!!! I went thru multiple trauma things an surgery also, An need this testing now as I have been diagnosed with MS now!! We are livng with alot of pain an misery!! Now our tempture has dropped dramaticaly it is BRRRR COLD,, i am not feeling too good,, with the added pain!! WELCOME AGAIN!!! WE ARE HERE FEEL FREE TOO LOOK THRU THE BOARDS ,,, feel free too post anytime,, ask any quetions we will be glad too help in any way we can,!!  |
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