Hi eels,

 

So happy to see you are still with us in the group. My husband is getting ready for the spinal stimulater and I was wondering what information you might have to share. Where did you find the info on the stimulater causing ulcers. One of our other members also has issues with ulcers and lesions and she found a cream that works pretty well for her. I'll see if I can find the information on it and send it to you if you send me your email. She said it works better than anything the docs have given her but I don't know what they have tried on her. If you like I can see if she would send you an email so she can give more details. I am relieved to hear that the implant seems to be helping him. By the way, you are only the third caregiver I have met and I feel we need as much support as those who suffer. If you have any suggestions for our site to help improve the support for family I would welcome it. I'd really like to see the family and friends get more involved and active in the group. I think it would help everyone. Please save my email and contact me any time. I'm so glad to know you are there.

 

Talk to you soon.

Tami

 

 

I can tell you if it were me I would get that electronic device out of my body, I was offered an SCS but I read so many negative articals and actually took my brother to an emergency room to get his removed because of other problems the temporary version caused, I think they are as backwards as a frontal labotamy.

Hi Frank,

I would like to here what information you have on the SCS. Scoti's doc is going to ask for it for Scoti. Please share any citations you have.

 

Thanks

Tami

 

hi, Daves ulcer are still really bad and he also got one on his hand. The RSD has now spread and is in both hands and both legs. He is still not sorry he got the scs though, as the pain is more bearable with it. We get a lot of info from Dr Hooshmands RSD Puzzles. Its easy to google it. Also, Dave has been really dizzy and faint. We went to the Docs and is Blood pressure reduced 25 points from sitting to standing position and his pulse was racing. Has anyone had this. I am scared that is immune system is stuffing up. The Rsd puzzle list says that it can attack the immune system. Also for the ulcers we got this new dressing called Mepilex. You only change it each week, and because no air gets to it, the ulcer heals quicker and doesnt get the germs in. Also Dave doesnt have to go through the agony of me having to clean and dress the wounds daily. I would post some photos, but are not sure how to. Hope everyone is having a good day. Love Eelsxxxxxxxxxxxx