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| (1 recommendation so far) | Message 1 of 10 in Discussion |
| From: rat_lover64 (Original Message) | Sent: 5/4/2008 3:18 AM |
I really have no clue what is wrong with them. I'm having someone else type what I say because well, my hands are too painful right now to use. Anyways about two year ago now I injure one of my wrists. The pain hasn't gone away since and I have pain in both wrists now. But I was never diagnosed with anything...I mean it could very well be the RSD but nothings officially diagnosed. Anyways it is a constant burning, sometimes more of a sharp piercing pain. At the same time though it tingles and feels heavy like it's alseep. Only minimul disocoloration...although one hand looks a bit swollen. But it's becoming hard to bend my fingers and my wrist. I was sitting at the computer trying to type up this literary analysis I have to do for english, when all of a sudden I just couldn't type anymore. My hands began to tremor, twitch, whatever you want to call it they were trembling uncontrollably, and they still are. Now I have to explain to my teacher why I can't type my paper. Every time I move a finger this shooting pain goes up my arm. It makes no sense, and I'm not sure what I should do about it. This is devestating. I am a writer, I need to write that's how I cope. Right now I can't type, I can barely hold a pencil, and I just felt so stupid because I had to ask my friend to cut my food because using the fork and knife to cut it hurt too much. What more can RSD take from my life? It's already crushed so many dreams...does it have to take away my dignity too? |
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My dear one,,,, I was really hoping that you had some good news for change. So very very sorry that you have too deal with this also... Darn it... I beleive that most of us in group,,,, would agree,,, it is meds.. and RSD together.. Not sure at all... All of them seizure meds that they give us telling us that they will help with pain n they do not.. High doses of them will cause shaking n tremors n spasms later on...I went searching about this on all sites and had too change computers n I lost those sites now,,,,, all asking n complaining about the shakes n tremors... I wish that I could remember how n where n why all resons for everyone else was complaining about... Even some drs agree that those side affects could be caused to be more severe by them drugs.. When I saw that,,, asked drs why would be given such a harsh drug no answer come forth. I hate this all.. I know what you are feeling about this all.. I keep my computer n everything messed up cause of them.. It is no fun n very unreasonable.. I have too be really careful around knives that are sharp. Not fun cutting self neither.. I really really wish that there were ease answers for us.. Alot easer answers.. RSD certainly makes life harder for us.. Should not be taking all of this away from us.. Not at all. We deal with it n change what we can.. Huggzzz dear..... O dr is trying meds that could help with these tho.. You may talk too your dr about it.. Meds so far are cutting down the severity of mine... Hope that they help with yours also.... So Sorry that I can not tell u if they will work... They putting mine rite into the morphine pump with the morphine. At least is helping me. huggzzzzz dearest Annie |
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Hello Rebecca, I have RSD in both arms n hands and have had it for going on 9 years now. What you are describing is what I live with almost every day. I type with my index and middle fingers as that is all I can get to work well enough to type...its funny to watch. On a good day I can type almost 20wpm....lol, my 15 year old daughter types 80wpm . The only discoloring I have ever had is in the palm of the left hand where the RSD started after a carpel tunnel surgery there, when the RSD moved next door into my right arm n hand there was no discoloring, very little atrophy, just the pain and crumblie fingers that do not type well. Well, lets hope n pray that your case of RSD has not moved into your upper body.....ya know my Daughter Morgan texts messages a lot and that makes her hands cramp up, are you doing anything like that? All these people who like to text message are going to fill the operating rooms with carpel tunnal syndrome while their microwaves from their cell phones are killing the Bee population..... No body wins any more...LOL Frank |
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I had the same thing happen with my left hand and had to train myself to write right handed. It was a drag, but it worked. Finally I got tired of the RSD ravaging my arms, hands, legs, feet and went to a doctor who started ECT, electro convulsive therapy. I've had treatments for a year now and am able to lift weights, ride my bike, work in the yard, and actually have gone back to work part time. If you want to know more about this, let me know. Best wishes for you as you experience this mysterious disease. Friends, Sylvia |
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Hi Sylvia, You bet we want to know about your ECT(Electro Convulsive therapy)! If you feel good enough could you kindly explain exactly what this therapy is and how it works? That is one of the reasons we are here is to exchange information, not to give advise but to give of our own experiances....I believe this is a wonderful way to help each other. I wanna know Sylvia so how about it?How about a new post in the general tab with ECT information and how it helps you? Thank You Franknberrie |
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Just a thought? It could also be Carapal Tunnel Syndrome. How long are you on the computer? That same thing happened to my hubby and he had to have the surgery. His happened from shoveling heavey snow. Go figure. His was a freak injury. Just a thought, Michelle |
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| | From: lgs131 | Sent: 5/8/2008 2:26 PM |
Sylvia, I would love to hear more about this treatment. Is it at all similar to Transcranial Direct Current Stimulation which is now being researched at the Department of Pain Medicine and Palliative Care, Beth Israel ? Linda |
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| | From: lgs131 | Sent: 5/9/2008 2:03 PM |
Franknberrie. I found this article on ECT and RSD in the March 2008 issue of Practical Pain Management: Linda |
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