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General : I need to vent......
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 Message 1 of 7 in Discussion 
From: mamajama  (Original Message)Sent: 8/22/2008 8:48 PM
I need to vent......like many of you I am dealing with w/c crap. I have been dealing docs trying to push meds, which don't get me wrong are great when things are bad. But, I am trying to go drug free. I had been doing accupuncture and other "alternative" methods. My doctor and I discussed biofeedback, great lets try it. I get to the w/c approved docs office......THEY SENT ME TO A F*%# SHRINK!  The first thing he says is Pain is an emotion.......blah blah. Yeah, its my emotions that are keeping me from doing the things I love and miss doing. Its what keeps me up all night. Its what makes me want to CUT OFF MY ARM! YES, ITS MY EMOTIONS! I can not believe this is what we have to go through. If they want me to see a therapist because I am depressed, fine I will. I will tell you how I hurt and how it has effected my life. But, don't tell me its my emotions or that its all in my head. And don't start out by saying lets start out from where were you born........how does that have anything to do with my RSD? And tell me you are sending me to a "Doctor of Behavioral Medicine" at a pain clinic instead of the actual pain management doctor. I wish each and everyone of these doctors that treat all of us had the pleasure of having RSD and we could tell them just relax IT'S JUST YOUR EMOTIONS! Sorry for yelling in here, and thanks for listening.
Hope everyone is doing well,
Peace to all,
Jama


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 Message 2 of 7 in Discussion 
From: MSN NicknamecosmicmamaSent: 8/23/2008 12:10 AM
You probably already know this, but there is a list of things that mds. have to complete when doing any eval.  You see the same stuff with ever IME you will have.  I know , I have had probably 15 in the las 13 years.  If you feel like doing research you can start with the state division of w/c and find out what an IME is supposed to cover.  Then there are web sites that give you info as to why they ask things like the final question, that always is how much do you receive in benefits.  You probably know, but that question is supposed to help determine if financial reasons could have an affect on your desire to return to employment.  Sort of like malingering for money.  I found some of the info really helped me prepare my answers in an honest way but phrase it just the way it needed to be heard.  Shrinks also have these check lists that they circle levels and other crap and there are a number of tests that they use to eval you.  So many of them.  Some are tests to measure malingering.  You just wouldn't believe.  Also, some of the level 2 mds teach class to other mds trying to get their accredited level 2 so that they can get on the IME list.  They are all taught tricks of the trade, but there are always some great docs with the level 2 .  It just kind of helps a little to know what you are up against if you draw a bad apple.  I;ve read some of these things in papers that deal with a real negative approach.  They use terms like getting a patient to "tell their tale of suffering".  Those kinds of seminars must really attract mds looking for a w/c sugar tit.  Oh, God, did I say that?  Yeah and it felt good.
 
Sometimes I think that someone should put together info for people suffering from debilitating illnesses ,but  not to play a dangerous game of outwitting an md.  That is really dangerous and why would someone who is ill really want to do that?  I drains a sick person of energy they just don't have..  Just something that will help keep a person from falling into being the only one in the process that doesn't know the rules of the game.  Too many good trusting people get really hurt.  Illness is a business liabilityThere is absolutely no way to get around that, I guess.
 
The family history generally and life's events can be tied in to preexisting depression.  We all know HIPPA really protects sharing of any of our medical info with uninvolved parties.  But, w/c is not bound these rules.  They see it all.  Employers, if I got this correctly, have access to your treatment and diagnosis.  I think it can all be shared.  That's what got me really hot.  To think that 13 years ago, my supervisor was privy to some of the info.  I know she was because she told my co workers about the  diagnosis of rsd/crps being considered as possible raynaud's.  My awsome attorney told her that if she discussed my info with co workers that we would take legal action.
 
I have a shrink that is not a w/c pimp.  I count my blessings.  I trust him and he notes info w/c needs but most of what we discuss never ends in the notes.  The depression secondary to pain is the theme because it is the one thing w/c understands and the thing I need to assure that my meds are continued without interruption.
 
If I sound like I am on my soap box, I guess I am.  I just really feel angry for you.
 
Be prepared in any way you can.  


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 Message 3 of 7 in Discussion 
From: MSN Nicknamemirage_angel_hopeSent: 8/23/2008 3:13 PM
I am sorry that you are going through this foolishness.They always want to say it's in out head.They told me that I was acting this was because my parents didn't love me enough and being adopted caused me to show theses smyptoms yeah because burning legs is a great way for attention.I feel for you just remember that they are dumb and that they do not know you or you struggle and just keep fighting
much love
mirage

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 Message 4 of 7 in Discussion 
From: MSN NicknamefranknberrieSent: 8/24/2008 11:24 PM
Mamajama,
 I know and have been thru the same thing, the w/c shrink said my pain was because I was so angry..call a person in severe pain a liar and darn right they are going to get a little angry especially when the whole w/c system works togeather to rid them selves of an expensive claim. I was lucky I have a vicious comp lawyer who didnt like to see his clients treated bad and in the end I cost w/c almost a million dollars total...actually I should say w/c cost them selves because it was their crooked ways that got them cought and busted for bad faith.
 I would like to see audio/video cams in every comp Drs office and have it monitored by an outside source that couldnt be bought off like so many comp Drs are! My blood still boils when ever I see another person taken for the ride of their lives by a very criminal w/c system. I have felt your pain and anguish, w/c makes RSD so much worse.
Franklin

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 Message 5 of 7 in Discussion 
From: MSN NicknamezapmyrsdawaySent: 8/24/2008 11:55 PM
dear jama,
 
my dr, sent me to a pain management psychologist.  she ended up being a godsend.  she does all the biofeedback  etc. stuff too but she is also a good sounding board.  she administered all of the typical psych tests too.  she was instrumental in getting my ssd too.  depression strikes rsd patients and she helps with that.  hopefully you will have a good experience with your psych.
 
zap

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The number of members that recommended this message. 0 recommendations  Message 6 of 7 in Discussion 
Sent: 8/25/2008 4:28 AM
This message has been deleted by the author.

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 Message 7 of 7 in Discussion 
From: MSN NicknameA_Normalee_TSent: 8/25/2008 4:32 AM
Sorry I couldnt leave my post up. I was angry and got a little out of character so I deleted it.

I just want to say dont let them make you appear uncooperative and make you angry. Anger makes your pain worse.

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