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General : hello everyone!!
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 Message 1 of 4 in Discussion 
From: MSN Nicknametina4evr0  (Original Message)Sent: 9/28/2008 4:31 AM

Hello Everyone!!  My name is Tina for the ones who do not know me, I too suffer from RSD. I too have been here and there dealing with appointments and had the blues lately. I know this time of year gets everyone upset. That cold weather sure flares up my RSD. Halloween will be here before we know it, then X-mas!! Such a stressful time of year!!!! Im so sorry everyone, Ive been reading all the things everyones been going thru, here lately. Even if I dont  get a chance to respond ,youall are still in my thoughts and prayers. I was just gonna let some of youall know that sometimes you just got to stop and take a breath or two .It took me awhile to realize that I needed too! I am Thankful that this horrible disease is not one that where I was gonna loose my life. For the simple fact I have 2 children and 2 g-children,and I can still be here for them in so many ways!!! It took me a while to figure out what I could do and cant do. Course we like to keep our house cleaned up, well at one time I could get a lot of things done in one day. Now it may take me several days, but so what if it takes that long thats how we have to learn to do it!!! Also, I went thru some things as isolating my self away from everyone and anything. WeLL alls that did was cause me more problems! So I decided its time for me to change a few things, I started getting out early in the mornings and going for a walk, it was so peaceful and beautiful.Sure helped me get rid of those love handles that I needed to get rid of! But , its true you have to find things that keep your mind busy. You also might just find out what kind of other gifts you have, that GOD gave you and you didnt know that gift tell now. I have a wonderful doctor that takes great care of me,it is so important to find you a doc that knows EVERYTHING about this RSD. My doctor says also that those of us that suffer the RSD actually we need alot more rest and sleep, and im talking at least 10 hours or more. So some maybe should try to rest your body more because we get exhausted  faster. Well, Ill quit ramblin on for now!! EVERYONE hang in there!! MAY GOD BLESS EVERYONE AND OUR FAMILIES!!!   Your friend, Tina



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Reply
 Message 2 of 4 in Discussion 
From: ladojoSent: 9/30/2008 4:54 AM
Hey Tina! So good to hear from you. I often wonder how you
are doing, and so glad you have gotten more up beat.
I have had a rough month or so here... Somehow, I am fighting
a teenage kissing disease... Strange to be told at my age...
I thought you had to be exposed to that. It has been so painful and exhausting. I hope it's starting to go away! I spend most of my time in bed, watching tv, and working sudoku puzzles. Some days it's all I can do to get something to eat and drink.
Seems we all have something different going on, and all seems so strange to me. I have always been so healthy, and getting older never seemed to slow me down, was full of energy. I keep believing it's all in God's plan. We just have to hang in there.
God bless you, and all of us as we continue our fight.
{{{{{{{Group}}}}}}}
ladonna

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 Message 3 of 4 in Discussion 
From: MSN NicknameSylviaMarieZSent: 10/1/2008 7:19 PM
Hi,  I too have had RSD for 4 to 5 years, and am much better now.  I can ride my bike, work out with weights, and actually take care of a man with Cerebral Palsy.  May the Father bless you and help you through this.  I prayed and prayed, and my prayers were answered, along with a good MD who did ECT on me for a year.  I'm all done with it now.  Bless you my friend.
 
Sylvia

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 Message 4 of 4 in Discussion 
From: MSN NicknameCountrydiva71Sent: 10/6/2008 2:45 AM
Hi Tina, I'm Dawn, fairly new to the group..... I wanted to comment that I thought I was crazy that i wanted to nap all the time, I thought It was just part of the depression. I've been letting myself rest when i need to ..... my physical therapist also has me walking a lot, says its good for the circulation. It's definitely helping to relax me also... keep your positive attitude and thanks for the tips, Dawn

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