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Hi daggie122,
I am so sorry to hear that you are having such a hard
time with everything. Please don't give up. Take life
one day at a time, one problem at a time, sometimes
you can only do minute by minute. First I would deal
with trying to lower your pain so you can cope better.
Talk to your doctor for some options to give you more
relief. Learn how to meditate to help get you through
the really high pain days. Eat healthy and stay away
from junk food and chocolate and caffeine as much as
possible. Avoid all the things that cause you stress
for a while and clear your mind of your troubles for a
minute. There are lots of suggestions on the boards
about that. The biofeedback is an excellent tool to
help you learn how to lower your pain on your own. Ask
your doctor about it and read about it on the boards
and the web. Second, think about some options that may
be available to you to help with your financial
situation. There is one member here that I know of who
has decided to take in some room-mates (or house
mates)to help pay the bills and has one room mate who
helps her with her personal care. It was a challenge
for her at first and had to change room mates a few
times but it seems to finally be working out for her.
You might give that some serious consideration, at
least until you get things ironed out with wc and the
army. Also there are some assistance programs that you
may qualify for. Check into your local government
assistance programs and apply for everything you can.
Even a little help would be better than none. It may
provide you with just enough to be able to hold your
head above water. Don't give up on fighting for your
ssd. You usually have to appeal their decision and
your atty should be helping you with that as well.
Third, re-evaluate your lawyers knowledge about RSD
and what his actions and reactions have been. If you
don't feel completely confident in him then you should
get another opinion from another atty. Shop around. If
you send me you email I can send you a link for a law
firm who deals with RSD and has a net work of atty's
accross the U.S. and they will talk with you about
your case and situation and find you an atty that may
be able to do better for you. They also offer
knowledge and support to those atty's. We are using
them know and feel very good about them. They have
taken a lot of time to research what ever they can
about RSD and how it affects your life. Your atty may
be good but may just need a little more confidence and
knowledge about it all. You can help him by sharing
what ever info you come across. If you only have a wc
atty then you may qualify for a second atty for a
civil suit depending on your situation. I would
definitely consult with several other atty's who know
about RSD. Even if it is not in your city. You can do
a lot of it by phone or online. Do not settle with the
first few offers. Hang on and fight them! You do risk
the chance of loosing your house and everything else
but if it gets you the bigger picture and more money
to help with the remainder of your life then it will
be worth it in the long run. We are going to have to
downsize ourselves just to survive.
Forth, re-evaluate your medical care and your doctors
knowledge of RSD. Do more research about all the
options out there and if your doctor hasn't already
mentioned them then educate him too. Get a second
opinion and a third if needed. Shop around for a good
neurological surgeon and a neurological pain doctor.
Even if you have to travel a little to get the other
opinions. It will definately help your case. I also
have a link for prescription help but I have to locate
it on my computer. I can send that to you as well. If
your RSD is not pre-existing then they can help you
prove it. If it was then there are still other options
for medical care. The more we fight and win the more
the government will acknowledge RSD and the more help
we can get. The professionals we have to deal with
today don't know enough to just trust them on their
say so. We have to do some of the leg work and
research it ourselves so that we will know if they
know what they are talking about and even have to
educate everyone involved sometimes too.
Last but not least, you need to broaden your support
network. Talk to others about it all and get their
input and talk to people who listen to you. This group
is a good place to start. I have other links for
support as well and you can chat live with others and
make friends with people who know how you feel and
probably have some other ideas to help you. Don't shut
yourself off from everyone. Reach out and let others
know you need someone to talk to. It does help get you
through the bad days. You can email me anytime.
[email protected] and instant message me when ever
you see me online. I have yahoo so it works with msn
too. You are definitely not alone and we will help you
get through it all. I know I am long winded but I felt
you needed some things to think about that would help.
I hope tomorrow is a better day and lower pain.
I hope to hear from you soon and stay strong.
Tami
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