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| | | Message 14 of 14 in Discussion |
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Hi,
With all my heart, I'm so sorry for all that you're going through. For what it's worth, I've walked on many of the paths you are, so you're not alone.
Regarding the RSD crossing from one leg to the other. I too had RSD only in my left leg for the first 8 years, then all of a sudden it popped over to my right. It only took 3 years for the right leg to be equally as damaged as the left. Both are black all the way to the knee.
Workers Compensation is not about helping the employee. It's about controlling medical losses/costs whenever someone gets hurt on the job. This system is totally out of control, and I'm very afraid you'll only see it get worse over time.
We too had a case, and we were actually the one in a million that went all the way to court (it took 8 years). We were in court three whole weeks. It was the worse 3 weeks of my life. Sadly enough it was Sprint who'd caused my accident, but yet when they learned I had RSD they hired the very best experts who would say exactly what they wanted the jury to hear. Their lies were better evidence then my truths, so in the end we lost. Once again I must sadly admit that our court system is in ruin.
Now the question is where you go from here.
#1: Accept that you're going to make some changes. This might include moving into some type of assisted housing, or even living with a loving family member or friend.
#2: The reason you didn't get approved for SSD was simply because your doctors have not documented your damage correctly. If they'll state exactly what the damage is, and your prognosis, your RSD will be approved through SSD. Thanks to my doctors I was approved 90 days after we submitted our request. Go back and start again, please.
#3: Stop comparing life with yesterday, because yesterday is over. I have been wheelchair bound for 9 years, haven't made love in 11 and have not slept in a bed for 2 1/2. Life is not what it once was, but trust me, there are new wonderful days still ahead, so long as you're willing to change the way in which you accept them and strive to become more.
RSD (and in my case, nerve damage) has changed your entire life. Finances are falling apart, and you don't know where to turn. You are not alone. With inflation going through the roof, we're all scared to death each month at how we'll keep our checkbooks in the black. When my mother started to send me some money every month my ego hit an all time low, yet I put my ego aside and just appreciate her love and help. You too will need to accept that which is shared from the heart, including cash.
Get with Family Services and see what direction they advise. Trust me, they will work with you, and they'll try every single option out there, so long as you're willing to work with them too.
Last note: Pain is our constant companion. You don't have to feel like you're loosing your mind as the pain devours you. If you're not getting pain relief now, then you'll need to find a doctor who will care. It now takes me a morphine pump plus 3 additional oral opioid's each day so I don't scream all the time, and yet I'm still in pain. You'll never get away from it 100%, but with time and good medical care, it can be reduced.
The hardest problem I've had, and still do, is in allowing my friends and family to help, yet without them I'd have lost my fight a long time ago. Let those in your life help, but don't forget that it's a two way street. Make sure you come up with new creative ways to share your love and care for them too. I've learned how to bake bread. I now make cross stitch book markers, and I'm always around whenever someone is in computer crisis since that's what my background is. Share the skills you have with those who care for you, and you'll get even more in return every time.
Please take care, and know there are those of us who do. Bob. |
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