RSD Helpline Support Group

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The MSN Groups service will close in February 2009. You can move your group to Multiply, MSN’s partner for online groups. Learn More

I am annie I was DX with RSD 3 yrs ago!! I feel for any one who has too deal with this really beast of a monster of creativity to our bodies!!! I am so sorry that anyone should have too deal with this monster. IT is painful and creates alot of hard too live with facts. We have too keep in mind we have too be able too talk too our drs about anything that is happening in our bodies and how the pain is affecting us. And also if the dr is not informed on the subject of RSD,, dr should be able too direct you too one who is informed so that correct treatment is given ASAP. That is one thing with RSD correct treatment is needed as soon as is possible too help with therapy and treatment of. LOVES and blessings annie

My name is Vickey and i was dignosed with RSD it coming up on 4 yrs,it has been a real roller coaster for me.So i know i how you feel it can get very depressing at times because i dont know with you but i know with me, people dont seem to understand what its like to be in pain everyday,i think they think i just be like its all in my head when he they be calling me and they ask so how are you feeling and i tell them i am having another bad, or my husband sometimes wants to get me out of the house and i dont want to go because i know if i go out for a little while i come back in for the little outting i had i am in pain. I dont know where your RSD is located at but i have in my left arm/neck/left leg i am on my second SCS which is called a spinal cord stimulator they just added the leads to the leg,because the RSD just moved down to my leg.You know some of these doctors need to be more educated about this condition because i dont know about you but for me it they keep telling me there was nothing wrong with me and by that time the RSD had already set in for 10 months.

So trust me i undestand your pain to the fullest.

I just wanted to welcome you to our little family.My names Aimee and I am a member here as well as annie.People always have trouble understand what being in pain all day is like.People always think it's in your head because when they look at you they don't see and thing wrong with you.Docs love saying it's in your head .Don't worry about being depressed sometime it happens to everyone.I would be amazed if it didn't.Most people don't get it that the pain never ges away but people will begin to understand when they get to know you better.I had had rsd for five years now in my right leg.I had blocks done and been on tons of meds with little sucess due to the fact that I had it for four years before it was found.

If you never need anything I would be glad to help if I can my email is [email protected]. I respond very quickly to all my emails.Once again welcome always great to meet someone new

Important Announcement The MSN Groups service will close in February 2009. You can move your group to Multiply, MSN’s partner for online groups. Learn More
RSD Helpline Support Group	[email protected]