Hi Franknberrie,

Thanks for the info.  The erratic functioning of the SCS was both when my son adjusted the pulse himself with his remote control and when we were at the doctor's and the Medtronic rep was doing it.  However, when it did start working predictably, but they could not program it so that it made my son feel better.  Witrh the trial one, the doctor (not the Medtronic rep) was able to program it so that it reduced the pain in his legs considerably (with only one lead) which is why he went ahead and had the permanent one put in.  No one (not even the doctor) was able to reproduce the same effect with the permanent two leads.  First, they had trouble covering his legs without hurting him in his abdomen and also, when he felt the same feeling in his legs as he had done with the trial, it made his pain level increase instead of decrease.  He has now had it removed which is great bc the control device in his buttock always gave him extra pain down his left leg.  I know the these devices help some people (which is why he tried it instead of having the pump which is previous pain doctor wanted to do) but it did not work for my son.  Linda