Hi, I'm Elizabeth. I was tentatively diagnosed with RSD a little over two years ago. Recently I started working with a great doc who confirmed I do have RSD/CRPS. I just had my second series of nerve blocks with little success. The doctor now wants to do a spinal stimulator trial. I'm very nervous about moving forward. If anyone has experience w/ this treatment, I'd love to hear about it (good and bad). I've sort of put the breaks on all the aggressive treatment (the stimulator and methadone) so I can try some alternative treatment (accupunture, deep tissue, etc.). Again, if anyone has any war stories from going the alternative route, I'd love to hear about it.
I'm happy to have found this group. Though I have a great network of friends and family, this disease makes me feel very lonely. I don't think anyone can fully get his/her head around it unless he/she is living w/ RSD. Thanks everyone. |