MSN Home  |  My MSN  |  Hotmail
Sign in to Windows Live ID Web Search:   
go to MSNGroups 
Free Forum Hosting
 
Important Announcement Important Announcement
The MSN Groups service will close in February 2009. You can move your group to Multiply, MSN’s partner for online groups. Learn More
RSD Helpline Support Group[email protected] 
  
What's New
  
  Welcome  
  Message Boards  
  General  
  Group Rules  
  Welcome Newbies  
  Our Toolbar  
  Monthly Check In  
  NEW CHAT ROOM  
  Kid's Introduction Page  
  RSD Intro's  
  Coping With RSD  
  FAMILY INTRODUCTIONS  
  RSD Questions  
  ADVOCACY PROJECTS  
  RSD News  
  A Laugh A Day  
    
  Pictures  
  Poems n Such  
  Healthy Recipies  
  Workman's Comp  
  RSD an Pregnancy  
  Help Wanted  
  Prayer Request  
  Caregivers  
  
  
  Tools  
 
RSD Questions : Back from Ketamine evaluation
Choose another message board
 
     
Reply
 Message 1 of 2 in Discussion 
From: MSN NicknameDebbiehub  (Original Message)Sent: 6/4/2005 2:12 PM
<DJust wanted to report back on how my appt with Dr. Getson went. First let me say he was very nice and very laid back (but very knowledgeable) I was comfortable talking to him within a minute of meeting him. After reviewing my history he gave me his suggestions. First was to have a thermography done to see if the RSD has spread to my hand (from my foot) He is really into thermographys and feels they are extremely useful. So... if it hasnt spread then he thinks first I just at least do the trial SCS. If that doesnt work then go for the ketamine. Or if the RSD has spread to my hand then I shouldnt bother with the SCS- I should just go for the ketamine.

Now here is the clincher, which I am still confused about. If my insurance will cover it then he said I should do the awake 5 day hospital stay. BUT if my insurance doesnt cover it and I am going to pay out of pocket then he said I should go to Germany and do the coma tx for the same cost! I was blown away! He said its more bang for your buck and that the coma tx would be a lot more beneficial. He said they are having great success with no bad side effects. But I am no where near ready to go for the coma. I still work and am not as bad as many of you here. So....I am so confused --
PS. I believe Dr. Getson is the only doctor currently doing the ketamine in the US
Debbie. If you have any questions please feel free to email me at
[email protected]
IV>


First  Previous  2 of 2  Next  Last 
Reply
 Message 2 of 2 in Discussion 
From: MSN Nicknameannie57011Sent: 6/24/2005 5:52 PM

{{{{{{{{{ DEB }}}}}}}}}}} glad U have found a dr. who seems too know what needs to be done.... Tho the Germany part, would have been hard for me too accept... Is sure a blessing too know when Dr. seems too know what needs to be done...Some of us have been thru office after office... Seems like a no ending story.. All of the suffering we go thru getting to that part...  We come too hate it all so much... Being comfortable with dr. who is doing the treatment is also a tremendous help...  Sure can break the pocket book for treatment also,,, gets old having to go thru all of this.. I am in my 6 yrs having this unwelcome beast in my body.. I am constantly looking for ways too get rid of it..   Glad u gave us the upday.. So sorry I have not been online,,,,,, I was sooo sick with my flare of some kind.. Dr. will tell me if was RSD or not on Monday,,,,, the fever left me sooo drained,,, First time,, I had had low grade fever tho.. It was infected,, had to go,, too office n ER,,, over  weekends each day,, for shots for antibotic,, n pain,,,  this was worst I have had,,, was so close to where they cut me open to put the pump in to my tummy,,, was terrible afraid for the infection too spread into that...So were not taking any chances,,, Took soo long too get rid of it,, I am still on the pills,, for antibotics,,, still not cleared up totally...  So Hopefully will catch you soon...  Please forgive me for being soo slow in answering,,,  Chat with you anytime I am online if you add me too your msn messenger,,,, [email protected],,,,,,, No one should ever feel alone in the changes we go thru with this beast at all.. Terrible time for all of us..